Research Studies

Posted on: Mon, Feb 8 2010 6:53 PM

Posted by: blondieblue227 Posts: 557

what have you found out about yours?

i've kept a log about mine here:

http://www.ivykennedy.com/articles/treatment.htm

Posted on: Tue, Feb 9 2010 9:50 AM

Posted by: TriDog Posts: 2,799

blondieblue227:

what have you found out about yours?

Nothing. But I don't go looking either. 

I figure it is what it is.  It's not going to change much for the better.  Best just to live and enjoy.  If any break throughs happen, I'm sure I'll hear about.  So I tend not to waste the time. But let me know if you find anything I can go get tomorrow. 

Posted on: Tue, Feb 9 2010 1:57 PM

Posted by: blondieblue227 Posts: 557

Yup. My life is what it is.

I posted this because stem cell research was mentioned in the other thread. and he/she had a good point. Stem cell research isn’t talked about. She/he wondered why there wasn’t a thread about it here. I have no idea why out of all the net a forum about disability wouldn’t have a thread for it. so that’s why started this one.

Even when I first heard about that cord blood treatment I thought it was a hoax because I found absolutely nothing on the net about it. So much for the net, the super information highway.

I hope this doesn’t turn into a ‘how do you perceive your disability?’ thread. I’d like to know how far science has come to help disabilities and compare notes. That’s all.

Posted on: Tue, Feb 9 2010 8:26 PM

Posted by: caindo Posts: 81

I checked out a place called xcell in germany. Ive actualy talked to a guy that lives in the town were i live who has gone and gotten treatments. He has MS and it is to the point were he is in a wheelchair. HE goes to germany gets his treatment and he says it takes his progression back a year or two. Basicaly he leaves in a wheelchair and comes back walking. HE say he has to go every two uears or so. HE has told me that with the injury i have ( a brused SCI) that it is curable. I have contacted the doctors and found out what they will do for me. It sounds good to me. They inject my own stemcells in to my spinal cord i think he said at L11 and. He also told me that most people get back about 40%. The first thing is my bouls and bladder function.  It is daone in four days as a out patient. Its cost is fifteen thousand dollars. They have been doing this for 10 years.  You want to talk about you government and doctors hiding things from us. If they cure us then they dont have repeat buisness. Dont get me all worked up over this. I am so mad a bout this subject...

Posted on: Tue, Feb 9 2010 8:29 PM

Posted by: caindo Posts: 81

Tri dog  this sounds like what i dont know wont hert me.  and yes you can get it done tomorow.  the U.S. has sensored this kind of stuff from us.

Posted on: Thu, Feb 11 2010 6:08 PM

Posted by: blondieblue227 Posts: 557

makes me mad too. but what you've shared sounds awesome. thanks.