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  • permalinkHow did YOU find Disaboom?

    mcjane

    Posted on: Tue, Feb 2 2010 4:43 PM

    I just read where PerfectlyImperfect..affectionatley known as Perfy or PIP...said she doesn't know what she is doing here.  I dunno either...but I'm so glad she is!

     

    My sister told me about this site in late 2007...shortly  after I got paralyzed.  She saw it on television, a Christopher Reeve special.  It has been such a great help to me it should be called DisaBOON.

     

    How did you come to be here?

  • permalinkRe: How did YOU find Disaboom?

    PerfectlyImperfect

    Posted on: Tue, Feb 2 2010 5:06 PM

    Aw, I'm glad you're here, too Jane!

     

    A couple of years ago I wanted to find other people with ectrodactyly. My entire life I had only read about it and even though I almost always fit in, I wanted to talk to other people who had ectro. I never considered myself disabled and still don't. But I didn't know where else to start, so I began checking out disabled groups on Myspace. On one of their threads on a message board, someone talked about Disaboom. I looked into the site and about 2 years later, here I am. I am yet to find someone here with ectro., so I've often wondered why I stick around. I mean, if I don't think I'm disabled and there's no one else with ectro. here, then why stay a member? I really don't know why, to be honest. A part of me does because I have met so many wonderful people here. Another part does because I have that small hope some other ectro. person will stumble across this site, too and I want to be here in case they should come with the same mindset I had.

    "Charm is deceptive and beauty is fleeting, but a woman who fears the Lord is worthy to be praised. -Proverbs 31:30"
  • permalinkRe: How did YOU find Disaboom?

    Musician83

    Posted on: Wed, Feb 3 2010 4:53 PM

    My mom recommended this site to me after seeing an Internet ad for it.

  • permalinkRe: How did YOU find Disaboom?

    Nightengale

    Posted on: Wed, Feb 3 2010 4:59 PM

    I was sent the link by a friend of a friend back in the beta stages. So I've seen the site through a bunch of rennovations.

     

    I was looking for a way to network with other healthcare providers with disabilities.  It ultimately didn't turn out to be the right forum for that (I haven't found the right one yet) but by then I had been around for awhile, so I stayed.

  • permalinkRe: How did YOU find Disaboom?

    Tania

    Posted on: Thu, Feb 4 2010 10:55 PM

     I receive a bunch of newsletters through a website called Crosswalk, and in some of these newsletters, they have a website of the day.  There are a variety of websites profiled, most of which are family-friendly.  A couple years ago, Disaboom was the website of the day in one of these newsletters.  I noticed the description, and I decided to check it out.  I joined the site, but, at first, I was too busy with school to look around on the site.  After an exhaustin semester, I got more involved on the site, and it has been awesome for a place for friends, to unwind after a stressful day, or to just vent in a blog.

    Tania :)
  • permalinkRe: How did YOU find Disaboom?

    caindo

    Posted on: Fri, Feb 5 2010 2:12 PM

    I found this site one day when i was at rehab. There was a Disaboom news letter on the table and i picked it up and read it and checked it out. I do have to say that i use this site more for information on my own healthcare than anything else. It has helped by telling me some of the ways or things that i need to do to take care of myself. What i havent found here is a cure. HAHA.   No seriously though how come no one talks about stemcell. Is it because it isnt avalible in the U.S. It has upset me the more i research it that the government has stoped its recearch. That is the only good thing i give O'bama credit for.  I have talkede to people who have gone to other countrys and have had it done and their is so much good that comes from it. Someone please start a thread about this.

  • permalinkRe: How did YOU find Disaboom?

    mcjane

    Posted on: Sat, Feb 6 2010 6:23 AM

    Caindo...maybe you could copy some of the articles you are finding and post exerpts here.  From what I have read about stem cell for SCI there has not been much success unless it is done in the first 24 hours.  What I read was there was no affect at all and another when sensation returned it was PAIN.  Thanks, but no thanks.

     

    I have read more positive stuff about exercise and diet.  Constant exercise, manipulation and movement.  The old "muscle memory" thing.   A place in Colorado is having great success ...

     

    Is your injury complete or incomplete?  I was recently told it can take 10 years or even more for the nerves to rebuild and find new pathways.  Oh...the mysterious spinal cord....

     

  • permalinkRe: How did YOU find Disaboom?

    Finetooner

    Posted on: Mon, Feb 8 2010 6:33 PM

    Believe it or not, I saw an ad for Disaboom on www.intellicast.com, my favorite weather site on the internet.  So, I hit the hyperlink and joined up.  I have not been on lately because my work laptop firewalls this site and my home workstation has picked up some sort of glitch which prevents me from logging in.  So, the only time I can get on is when I'm on the road. I'm currently in Pensacola.  Miss Y'all.....

    "ATTITUDE DETERMINES ALTITUDE"