Chronic Pain

 Hi,

I'm new here and wanted to introduce myself. I have an "invisible" disability--chronic nerve pain in my face, caused from a head injury after I was mowed down by a speeding bicyclist 8 years ago.

 

It's sometimes called Atypical Trigeminal Neuralgia and is unbearable most days, this week has been a nightmare, with an emergency visit to the neurosurgeon for a nerve pain block in the back of my head. So far, the pain hasn't been relieved.

 

The pain is throbbing, stain, burning hot pulsations in the right side of my face and some days I just cry from the pain. Thankfully, my husband is a very caring human but I worry about how much my condition has stressed him out so much.

 

I hope to find friends here who can offer comfort, a friendly email or simple hello. I am unable to get out much and won't know about surgical options for at least a week.

Hope to hear from anyone who has a moment.

Thank you all so much for considering this.

 

naomi

 

 

Hello Naomi and welcome ! I am Rainey nice to meet you . I live on the east coast and I am a para from polio . I am sorry for all the pain you are living with and I am sure it is not easy . I don't get out much myself anymore so disaboom is my new family and the friendships and support in here are just incredible . Welcome aboard and I look forward to getting to know you more for we can never have to many friends !

 

                                               Rainey  xo  

Hi Naomi,

Welcome! I hope you have received some pain relief by now.  I think you will find friendships, support, and encouragement on Disaboom.  I also suffer from chronic pain, but it is in my lower back and legs secondary to cerebral palsy.

My thoughts and prayers are with you.  Please let us know how you are doing.  Take care!

Trish

Hi Naomi......welcome to disaboom from another chronic nerve pain sufferer. Mine is from a SCI.......and the pain involves my legs......but I know how hard it is to deal with some days. This is the place to find others who will kind of know what you're going through........this community has lots of kind, compassionate and wise people......people who are willing to give you an ear.........and a shoulder sometimes.........the exchange is gratifying........it's simply a wonderful place......to ward off lonliness........and make new......hard, fast friends. So, again welcome. Looking forward to hearing more from you...........peace and love.......Norma

 hi rainey,

i am so grateful to have your response and sorry it took me so long to respond. my pain has worsened and i had an mri of the brain and neck yesterday (may 3) and now have to wait to get the thing read...interminable waiting seems to be my llife these days and i struggle not to succumb to depression. please keep writing, i am grateful for any support and welcome all reasons to keep on.....

 Hi Trish,

I am so grateful for your kind words. I have been feeling worse the past week or so and haven't been on the site but am so open to friendships, even if they are remote, because this pain is unbearable and i feel like this is half a life.

 

thank you again and please stay in touch.

 

naomi

 hi norma,

so sorry for the delay...the pain is worse and it is increasingly difficult to concentrate. i look forward to meeting new friends and taking the burden off my husband so much...i feel trapped in my body and have lost interest in so much.

 

please stay in touch.

 

thanks so much

naomi

Naomi..........you have many reasons to keep going.......I know the feeling of not wanting to......but.....hopefully......they will pass. They descend when the pain just gets to be too much........when you just can't see clear enough to make sense out of life........and your role in it ! But.......think of your husband.........what he would do without you.......your family........there are all kinds of reasons to keep going. It's my personal belief that God has a role for each of us......that we should try to figure that out.......but even if we can't.........we need to trust Him......that our role is important to Him........that this life on earth is a blip........compared to eternity. Now.........that's just my belief..........but on the chance that you share it........thought a gentle reminder might just help. I know that pain can drive you crazy.........my most horrendous thought about life itself.......have come during unbearable times of pain.......where there seemed to be no way out.........then.......some relief ! What do you take......or......do for the pain Naomi ? Any anticonvulsants ? Nerve pain is one of the hardest to get control of.I hope there is something that you can take.......or something you can do.....for some relief. You will be in my prayers that you get some relief........and that you will be able to want to go on with your life........and feel that there is meaning to it !..........peace and love......Norma