Spina Bifida

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  • permalinkRe: Relationships and Spina Bifida

    LifeANew

    Posted on: Sun, Dec 28 2008 2:18 PM

    Hi I am 40 years old Female with Spina Bifida and I had a relationship for 16 years.  The guy tried killing me and left me for someone else affected by a spinal injury.  I'm just fine not being in a relationship.  Yes there were issues we had to deal with but honestly I think it is the "ego" issue that mostly gets in the way. 

    Live Life to the Fullest
  • permalinkRe: Relationships and Spina Bifida

    Kelgon

    Posted on: Sun, May 24 2009 5:30 PM

    I am in just about the same situation as you. I am 21 and my boyfriend who is 23 has Spina Bifida. What's on your mind? Hopefully some of the same things I'm concerned about or have been concerned about. Glad I found your post - I've been trying to find people to talk to about the issues as they come along.

  • permalinkRe: Relationships and Spina Bifida

    Kelgon

    Posted on: Sun, May 24 2009 5:39 PM

    I know I am bias, but I believe there is hope for many people with Spina Bifida when it comes to relationships. I am dating a man with Spina Bifida. He has had many girlfriends in the past, some of which just up and left because they said they couldn't handle it. But then there's people like me, who could care less about the disability and just about the person. It is difficult sometimes because I have to juggle caring for him along with all the other aspects of our relationship. But in the end I love him no matter what. I personally believe there are other people like me out there, that there is someone for everyone.

  • permalinkRe: Relationships and Spina Bifida

    mitchums598

    Posted on: Thu, Jun 4 2009 7:10 PM

    Hi.  I'm new to this site & have spina bifida.  I'm not in a relationship probably because I'm too shy or have self-esteem issues...anyone else?!

  • permalinkRe: Relationships and Spina Bifida

    Rubyjane95

    Posted on: Thu, Jun 4 2009 7:48 PM

     It's really good to hear from someone who is about my age and in a similar situation.  We have become so frustrated and have faced SO many dififculties trying to behave just as other couples our age do.  For example, one of our most recent conversations has been about our frustrations with seating in movie theaters, athletic arenas, etc.  We love to go to movies and sporting events with our friends, but detest the fact that we always have to sit apart from all our friends because most places only allow for one "wheelchair" seat and one "companion" seat, as if individuals who use a wheelchair couldn't possibly want to attend an event with more than one person!

     My boyfriend also gets frustrated because he likes to be a gentlemen, and when we go out in public people won't let him open doors for me.  He'll be on the verge of doing so when someone will leap out and dramatically hold open the door for him, while meanwhile glaring at me as if I'm some sort of heartless freak because I'm letting "some poor guy in a wheelchair" open a door for me.

    We live in a very conservative part of the country, and I feel like people here are very closed minded about attributes that might be considered "different."  A lot of times when we go on dates or out in public holding hands, etc, doing all the things couples do, people awkwardly stare at us, when all we ant to do is be able to eat our dinner, etc., in peace!

     These are just a few of our frustrations as of late....have you had similar experiences?

  • permalinkRe: Relationships and Spina Bifida

    irish1968

    Posted on: Thu, Sep 24 2009 7:04 AM

    I also have SB. i have met different women. I know how you feel. once they find out your limitations they just want to your "friend"  that gets very old.

  • permalinkRe: Relationships and Spina Bifida

    irish1968

    Posted on: Thu, Sep 24 2009 7:11 AM

    Hi.  i am new here also. and have spina bifida. Sometimes i am shy especially if am really attracted to someone. I think the shyness for me comes from the fact that i know what will happen. she will say it was nice to meet you.  or a sweet guy. But i don't think it will work out.