Cerebral Palsy

hey there I feel so much better now. lol. im 20 and i felt old with what has been labaled mild cp since i was 16. i am 20 now. waiting to see a surgeoun because well no one told me in the medical world how difficult it was gonna be aging with cp. injuried my ankle have pain more often. i feel my career should deal with cp since i had no advocate and have over the yrs become my own. if  i have a career helping others with it maybe i won't feel like im missing a piece of me or ignoring my cp. bottom line i feel old worse and looking forward to college but had to jump off the boat and say hey school is number 2 now body is number 1. took a semester off to find out what do about my gait injury and career choice. this thread was long hard to read but encouraging since no one understands my rants lol. let me know if there are more u 20 and up getting old with cp.

 

 Blondieblue227.. You are exactly right..I have noticed the cpers that have had many surgeries and who kept walking/staggering for years are indeed the ones that are in
pain and have more problems...

 I eat healty drink lots of water try to stay in shape as much as possible... I tried swimming in warm water but my spasity was so bad I couldn't which was odd since all my childhood
I spent many a day in the pool splashing about even tho' I couldn't  really swim I could
walk amazingly as long as it was above my waist and if I fell I could get myself up...

If I do something that exerts energy I am tired for DAYS later... it takes forever to be ready to do it again... reminds me of my friends who have post polio syndrome.. They get tired really easy and must take it easy..

Hello I'm going on 63 this month and have had CP since birth and have been blssed with pretty much with good health most of my life with good health. During the last six years I have had two operations becaise of a bith defect that have caused strtctures in the urinary tract. I have searched the internet that has found promise in stem cells that could add some years to my life. Really would like to make it to 70. Supertooth

SUPERTOOTH:

Hello I'm going on 63 this month and have had CP since birth and have been blssed with pretty much with good health most of my life with good health. During the last six years I have had two operations becaise of a bith defect that have caused strtctures in the urinary tract. I have searched the internet that has found promise in stem cells that could add some years to my life. Really would like to make it to 70. Supertooth

 

 

Do you think you won't see 70 without stem cells or some other intervention? I'm 47 and had a butt load of surgeries as a kid.  All orthopedic.  Like you I have really good general health my whole life (not counting my hair line).  Personally I am planning on a long life. Somewhere in the late 90's or better. 

 

Granted some levels of CP are very serious and a person may not have much mobility.  But most case can be countered with activity and exercise.  I have a "friend"  from high school. Her CP is less serious then mine, yet she claims she can't exercise or even work.  I call BS on her everytime I see her.  If she just turne off Judge Judy and got off her couch and went for a simple walk around the block once a day, her health and life would improve big time.  OK. sorry about my little rant, but she really ticks me off.