Fibromyalgia

Posted on: Sat, Nov 7 2009 11:05 AM

Posted by: sandyfreytag Posts: 1,938

 Good Afternoon Everyone,

It is great to see that the Village is getting more responses then it has in a long time. I feel just like Valerie, that we miss hearing how everyone is feeling. When we don't respond then it kind of make a person think that they are alone again with this Fibromonster. We know we aren't alone but it is human nature to feel alone when no one responds. I hope this shows that everyone will be coming back to let us know how you are feeling.

I am having a hard time with my hands and knees. Summer was bad but winter coming is making it worse. This nagging pain in my muscles won't let up. Except for maybe a cough and a fever or sore throat I don't think I would know if I had the flu or not. I am still test driving meds that my doctor keeps changing. I do get a little releaf some days with this new med they have me on. I just wish it would last longer. Ok enough about me. LOL!!! 

How are all of you doing? I am with Merrie  I feel kind of bad to complain when about how I feel when Bonnie has gone through sooooo much more. My prayers are with all of you. Remember that there are miracles and maybe someday there will be something to take this pain away.

gypsylady, Thank you for entering our little Village and telling us about your mother. We are all happy when there is a person out there that believes the pain we are in. I am sorry about your mother and pray that you don't get the Fibromonster. Please feel free to join in here anytime because maybe we can help you to understand more or we can help you to know what to do to help your mother. 

Take Care and Gentle Hugs, Sandy 

Posted on: Sat, Nov 7 2009 3:24 PM

Posted by: merrie07 Posts: 10

This site is a wonderful thing. I am grateful to be able to converse with others that are understanding and compassionate. I once told someone at my church that I was recently diagnosed with fibromyalgia, and she never responded. The silence is terrible! I have no idea what was going thru her mind.

NEways, Sandy, winter is especially harder for me too. Do you have arthritis too? I have it due to my lupus. I will be praying for you.

Gypsylady, my heart goes out to you for you and your mother. I know the feelings you have of concern for her, since yal are so close. I am close with my father, and he doesn't have fibro, but eight years ago he had a heart attack, then quaduple bypass surgery, he also has diabetes. He is losing his voice, and with other things taken into account, my reasearch says that he probably has cancer. He can't afford to go to the doctor, and I think that he really is avoiding it, so that he can ignore what is going on with his body. I think deep down that he is scared, as am I. So I can imagine how much your heart aches and breaks when you think about what your mother is going thru.

Every day that we wake, God has a reason for us to be alive. If he didn't, we wouldn't be here! For we are not promised tomorrow, we are to focus on today. Make the most of today. Pretend like today is your last, and see if you go about things a little(or a lot!) differently. Do this everyday.

Hope all of yal have a good weekend. I am waiting for my husband to get home from work.

Merrie

Posted on: Sat, Nov 7 2009 5:39 PM

Posted by: sandyfreytag Posts: 1,938

 Merrie,

Yes I do have Osteoarthritis. My Rheumy says that she wouldn't count out RA even if the tests came back neg. She says my hands look like a 70 yr. olds that is how riddled my hands are from the arthritis. I love doing this, you know coming to the Village, but my hands don't like me to so I don't do it as often as would like to.

Mayor Jack,

What are you up to? You haven't been here for quite a while. I miss everyone.

Take Care and Gentle Hugs, Sandy

Posted on: Sat, Nov 7 2009 7:53 PM

Posted by: rabbitlady Posts: 511

Hello,

I am as before peeking in the window of our community.  Thank you to all of you who asked about me.  sorry I can't remember who wrote, name, I think it was Bonnie.  If I am wrong I am sorry.  I hope all are well and sending my best support and love.  Thank you, if it were you Bonnie, I look forward to getting to know you to.   I am a complete mess physically, like the rest of our community.   But not complaining - counting my blessings.  Now my knees are sprained, both, would you believe it.   I am awaiting my doctors appt. later this month.  Anyway, Osteoarthrities in my feet, ankles, knees back and other areas.   I thought I read this condition was not debiliating (spelled wrong), I think I was wrong lol.  I have a Bakers Cysts in my knees and torn ligament.   I am trying to stay off them, but it is hard.   The rest the same.  Had to fill out the Disability Update Report.  That was stressful.  Now awaiting their decision.  If any one gets it, I'll let you know what I read about it.   Well my hands are killing me and going numb (spelled wrong).  Hope everyone are as well as possible.  And know I am thinking about all.  Does anyone else have to keep changing their pass word.  Maybe it is me - Can't type or remember it.  Nicole, (would you believe I could not remember your name - fibro fog had to look for it lol) if you are out there, how are you?  Sorry I have not called, you picking up the phone is impossible lol.  I pray less pain for all and may the rabbit be with you.  

Rabbit Lady

Posted on: Mon, Nov 9 2009 5:22 PM

Posted by: squabwithfibro Posts: 3,158

 Sorry to hear of your painful knees, Gwen.  I still have hopes of getting my knee replacement done, but will have to wait until my hubby is better.  I had just been getting up my nerve to go schedule with my surgeon when my hubby landed in the hospital in ICU.  The two friends I have who have had theirs done this summer have encouraged me.  They are both doing well.  One is  going to have her other knee done in Feb.  She has had a bit of a time recovering since one side is paralyzed from a stroke in her 30's.  One really great thing is OT has been working on her paralyzed hand and she has regained some use.  She is thrilled!  I am in the same boat you are on the SSDI letter.  I got the same form and am nervous as well.  That time for review seems to have rolled around pretty fast!

I meant to ask you about Bugs.....how is the little guy doing?  Still have abscess?

It would be great to hear from any Villagers brave enough to post.....and that means YOU!

Yoooooohooooo.....Mayor Jack?   Maybe what this place needs is a trampoline!?!!

 I hope all are having a good week.

Gentle Hugs & Prayers,

Valerie

Posted on: Mon, Nov 9 2009 7:17 PM

Posted by: rabbitlady Posts: 511

Vallerie,

Sorry I have not written and this goes to all our villagers.  I am glad to hear that I am not the only losing it about the Disability Update Report.   I called all the attorneys and wanted to pay whatever they wanted for advice - they would not touch me with a ten foot poll.  It seems they are more interested in thousands of dollars, instead of hundreds of dollars.  I been willing to pay whatever they wanted, a few hundred is less than I get throughout the year.   My doctor gave me a hard time, but managed to get a truthful note.

Did you fill it out already?   If you did how did you address it, I had very hard and extremely stressful time getting info and help.   I don't blame you for being so worried, nice to know I am not the only losing it over this.  Language is a big thing with soc sec.  What I did find out, for all information, is that the review is done by clerks and I think computers.   What form did you get, was it 455?   If you got the 455 you are considered not likely to get better.   Doctors notes really help if you can get one.   Like you I a sweating it out and just don't trust the system, especially with the president's attempts.  Maybe I am over reacting, depression don't help....   But unfortunately income is important and you never know where life can lead you, sometimes down a different path..................

I am keeping good thoughts and prays for you and I think your situation is much worse with the knees.  So thank you for all your kindness and support.  Have there been more success' with the surgery than not?  I do hope so. 

Nicole great to hear you are alive and as well as possible.  I was very concerned my dear friend.  All my dear friends the same goes for you and I probable won't write much hands don't work, may hands keep going numb and pain (that does not make sense ).   I am going to try the wrist braces.

Thanks for the thoughts about my dear Bugs.  He is alive and well as possible.   Last night he chased his girlfriend around their room so fast three times.  That has not happened for a long time.  His infection still exists and is not going away.  Vet says as he'll be this way as he ages.  His weight is still low and but eats alot, he should really should be fat.  The vet tells me he trying to beat his condition.  I check to make sure he is still alive all the time.  I know when he leaves it will kill me, but push that right out of my head.  Every day I enjoy him and don't take his life for granted or Daisy Dos (2)'s, especially after Daisy One left me.   Please don't be offended, dear friends, but don't write anything about facing the truth about dealth.  I can't deal with that, I am still mourning the loss of my Daisy One.  She took a piece of my heart when she died.  But she gave me Daisy Dos (2) a gift from heaven.  

Well enough of that and want to send good and hope happiness to those villager's lives.   I can't believe I typed this much.  OK the braces are not helping and pain meds have stopped working.  Have to wait a few more hours to take more.  I guess I should early in this post.  Be well all, just to much pain everywhere.  Have to get out of this chair and in bed.  

Love Rabbit Lady

Posted on: Mon, Nov 9 2009 8:31 PM

Posted by: THUNDER40CAL Posts: 277

HI all,

I'll Try to keep this short and sweet, nothing much has changed for me, alot of pain daily, I try to keep a positive outlook, what amazes me is how everything changes as everything stays the same,... think about it, let it sink in and you will understand what I am trying to say, Life keeps growing and changing and we all still live our lives the best we can, and those who act like they are in control and make decisions that are supposed to make our situation better, Well They are ALL FAILING MISERABLY, I have been sick for 20 plus years forcing my self to get out of bed every day NOT FOR ME but for those I love, and now after 10 years of disability I fear for my survival with all the new BULLSHIT OBAMA and his dumb ass cronies in the healthcare field are trying to shove down our throats.

most likely none of this will help any of us to get better, most likely all it will do is line the pockets of a few politicians and to hell with all of us who need good healthcare.

Medicare takes another hit, so what we all get to sit back and watch the grand show and are powerless to do anything about it. Well it was not always like this , I REMEMBER A TIME WHEN WE THE PEOPLE MEANT SOMTHING IN THIS COUNTRY.

well folks our national debt is now 10.3 trillion dollars, I can't help but wonder when the hell WE THE PEOPLE are going to stand up  grab this run away bull by the BALLS and say enough is enough......  speaking of enough I have had my share.

I shall continue to pray for all of you while our president and congress continues to sell our country to the highest bidder.

Oh just one last question before I close.... WHAT ARE WE GOING TO DO WHEN CHINA FORCLOSES ON THE USA MAYBE WE SHOULD ALL LEARN TO SPEAK THIER LANGUAGE!!  WHO KNOWS maybe with all the talk of the end of days coming on DECEMBER 21st 2012 could that be the day we all become citizens of the UNITED STATES OF CHINA.

THANK YOU MR PRESIDENT THAT WILL TRULY BE A MEMERABLE MOMENT IN HISTORY HUH????

GOD BLESS ALL WHO SUFFER

GENTLE HUGS

JACK

Posted on: Mon, Nov 9 2009 9:40 PM

Posted by: jamie Posts: 500

 To all my fibro family. I am addicted to games on a certain social networking site mentioned by a few of you. If you would like another neighbor or such feel free to add me, Jamie Wood. Lots of hugs, got to take care of my crops andsuch!!!!!