The
test pilot crashed, but he survived, barely. The colonel was a former
astronaut, a national hero, and the accident promised to leave him severely
disabled. However, it was the mid-seventies and science was advanced enough to
not only save his life but to use electronic or mechanical parts that would do
more than make him feel "good as new." It would actually give him
extraordinary strength, almost like super-powers. The only problem was the
surgery to save this hero would cost $6M.
The story of Steve Austin, The Six Million Dollar Man was a fictional whisper
hinting that science had the secrets that could correct even the most severe
injuries. What was not fictional was the high cost. Has science taken steps to
fulfill up to that fantastic promise?
Although it pales in comparison, I have always been amazed with simple
voice-activated typing. Over the years I have tried several speech recognition
programs. They all seem to be pretty good once the software is trained to
recognize my voice. The only real problem I can find with this not-so-new
technology is working around others. This scenario is illustrated in a blog about a woman dictating in a Cyber cafe. She must
have been unusually loud to get the response in the blog and comments. No one
asked why she used it - was she physically unable to type. They just assumed
she was obnoxious.
Then I saw 60
Minutes on Sunday. There was an inspiring story about technology that is closer to the Steve Austin
scenario. A brain computer interface (BCI) allows a successful neuroscientist,
a hero of a different sort with ALS and "locked in" syndrome, to
communicate through a voice-activated computer . Before the BCI interface, he
could communicate only with his eyes. The technology involves new computer
technology, electrodes connected to heads and eventually brains, so we can
assume high costs are involved.
After watching 60 Minutes, I looked around to see how close science is
to turning a disabled person into a modern, cost-effective cyborg. Impulse™
provides wireless computer access to severely physically disabled people who
can control the faintest muscle contraction, any muscle. This is not exactly
performing superhuman feats, but it is magnifying a slight quiver into an
actual communicative task of exponential proportions. It was developed for
degenerative conditions such as MS, MDA, or ALS, and announced as becoming
available last month, October 2008.
There are always augmented and alternate communications solutions available now
such as DynaVox, IRISCOM, EYCIN, and others which allow people to make meaningful
computer connections using eye movement. This sounds similar to the device used
by Elke Wisbey in Saydrah's
post.
Another technological wonder I find particularly exciting is use of virtual
reality technology, not for communication, but to assist with mobility. Just
announced (last Monday) in Israel
is a cell phone-sized device that works with eye glasses to stabilize
an unsteady gait. The concept here is rewriting brain walking circuits. It
was developed specifically for MS, but will undoubtedly be welcomed by others
with movement disorders.
While most of these new technologies are pretty expensive, there are many other
affordable software applications and devices available today. Apple has offered accessibility aids for years and Windows
also offers assistive technology products. I now have a new wireless
computer mouse that can magnify where it's pointing, and it is extremely programmable.
How neat!
For the last several years, I have been using a small Sony VAIO laptop, weighing just 3 lbs., so it's easy for me
to carry around. When I bought it, there were few choices. Today, there is a
large selection of small, light laptops. Among them are the new Netbooks, which
are small, light, and even energy-efficient laptops specifically targeting
Internet use.
Well, none of these things quite fit into Steve Austin's life, but they do, or
will, certainly enhance many of our lives that have been interrupted by
disability. I salute science which has made giant leaps as well as tiny
steps to improve our lives and lifestyles.
There is no more noble
occupation in the world than to assist
another human being - to help someone succeed.
Alan Loy McGinnis
Notes:
Wireless Mouse - programmable mouse that magnifies
AbilityNet - Global Assistive Technology Encyclopedia
W
Filed under: Vicki's MS Path, disability, disaboom, health, disabled, Vicki, communication, alternative methods, assistive devices, independence, 6 million dollar man, scientific advances, steve austin