Blogging Against Disablism: I submit this idea: the Internet
is an equalizer among people with different abilities.
Before I was diagnosed with MS, my days were active and I worked full
time. I was a single mother of two boys, went to school, and I tried to
have a social life, too. After my diagnosis, I continued my schedule.
As the disease progressed, I moved into telecommuting before becoming a
stay-at-home person with a disability. Life has changed, and living
with a disability is different than any time in the past. One big
reason is the Internet. Today, much of my life is occupied with my
laptop.
Here are five ways the Internet is important to me:
1. Learning Information
There
are all kinds of articles and news about medical research. The Internet
can keep me abreast of new research and legislation. Because I have
signed up with newsletters and organizations such as NMSS and MSIF,
I get messages when new articles are available. It is uplifting to
learn how much research in so many different areas is active in so many
different regions worldwide.
I have also learned about people's
dedication, personal experiences, and the ways so many people have
touched others' lives. I was in awe of Sylvia Lawry
when I first read her story and the significant impact she has had on
so many lives, all because she loved her brother. There are many
stories out there, and I plan to read them all -- even the strange
ideas like administering carbon monoxide.
2. Socializing
The Internet allows me to maintain contact with friends, and has brought me many new friends online and around the world.
Of
course there is email. I know telephones would handle this, too, but
email allows us to communicate regardless of our schedules. We don't
have to wait until it is convenient for both of us.
Social
networking like My Space and Facebook allows me to keep up with all
kinds of people and with what they are doing. Flickr lets me look
through my friend's vacation pictures on my own time.
Then there are health networks like Disaboom, Revolution Health, and Patients Like Me.
Again, there is the opportunity to maintain relationships, but there is
even more. Each of these networks has its own strengths and satisfies a
different need.
On a smaller scale with a more specialized
target are networks specifically for MSers. These are usually set up by
one person like Brass and Ivory who collects and shares MS blog addresses, and sometimes with a particular interest like Active MSers.
They make me feel as if I should do it, too, but I have a hard time
keeping up with what is already out there. Maybe one day I'll start my
own niche MS network.
3. Managing my Health and Life
With
resources like news articles, the National MS Society, Disaboom, and
personal sites and blogs, there are so many places to find hints about
everyday living with a chronic condition. I can learn more about my MS
and the many, varying symptoms. Many people write about their symptoms
and medication, and how they learned to deal with them.
I can
create a log, tracking my disease progression, and read about others
going through the same or similar experiences. I can find recommended
equipment or accessible devices, or find resources to help with a new
problem.
I can learn to communicate better with my doctor to ask
the questions I would not have thought about. I regularly find hints to
help me live the best life I can manage. I can feel bolstered by my
online community.
4. Maintaining my Status as a Person
The Internet allows people with disabilities to do many things done by everyone, without discrimination.
There
are dating sites, even some that cater specifically to people with
disabilities. There are sites to help find employment, again, some
specifically for people with disabilities. I do not need a date or a
job, but I am glad to know they are available.
I do like to learn, and can take classes, and continue my education.
"A person who graduated yesterday and
stops studying today is uneducated tomorrow." ~ anonymous
And I do not plan to be uneducated.
The
Internet is a great resource for shopping. Most stores have an Internet
presence, so I can shop, and compare items, brands, and even stores.
There is hardly anything that cannot be purchased online. I just have
to be careful with my personal information and allow myself plenty of
time for shipping. It just takes planning, and a little learning,
because the item purchased does not always look like the picture. I
admit I sometimes use the mantra, "I want everything and I want it
delivered." The Internet helps make that happen.
Then, like
other Internetters, I can find online entertainment in the form of
music, reading, visiting museums, and playing online games.
5. Making a DifferenceI
am in awe of people who leave their mark, who inspire people to do
great things, to do all they can. I do not flatter myself with that
self image, but I try to write positive pieces and encourage people to
try again, to extend themselves as much as they can. I try to connect,
one person at a time, and I will listen to a dream, a fear, a hope, a
hard time, or a minor accomplishment. I hope I can make a difference in
a life. Maybe I can share my smile, and thereby pass it along. The
Internet allows me to try.
The Internet is important to me
because it allows me to continue learning and to be part of a
community. My friends and family as well as new online friends help me
manage my everyday life, and it feel as if I am still the person I have
always been, even with limited mobility and time resources. I can even
feel as if I help people or at least touch them one at a time, making a
difference.

