Kara
Kara
Kentucky
Female
Married

Disability discourse: Do you or don't you?

Posted: 6/26/2008 at 01:11 AM

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I'm not exactly sure why summer is always a more social time for me. Somehow I seem to squeeze in more meals with friends, trips to the park, and visits to the gym. It's a unique time in SoFla for me because several of my friends from school are preparing to move (some across the country) to begin their internships in August. It's the LAST leg of the road between me and my PhD so I'm looking forward to being in their position. My friend, Angela, is the only other student with a (visible) disability in our program and we've been trying to get together for a final supper of sorts for weeks. We share more in common than just wheels, but our professional interests are fairly different. She's a fan of the adults, which I tend to find whiney (heehee). I prefer (even whiney) kids any day!

[Photo caption: Me and Angela smiling after dinner.]

Adam (my fiancé), Angela, and I met at Buca's (a cool family-style restaurant) for dinner last weekend. We had lots to catch up on...there's our never-ending/just-beginning wedding planning adventures and her upcoming move to Boston. I'd promised Adam that we would avoid dissertation chatter as that puts him immediately in a hypnotic state. We spent most of the evening rehashing funny airline stories based on the joys of traveling with a wheelchair. Since all three of us have had several of own interesting experiences like this, it was a different sort of conversation than I might have had with able-bodied friends or even my family members. So it got me thinking...when you are with other people with disabilities, do you naturally talk about disability-related subjects or is anything truly fair game?

We all have different doses of disability in our everyday lives. I'm fortunate to live with someone who not only understands, but relates, to almost everything I encounter with my specific disability. I also feel lucky to be so connected to a community, like Disaboom, that offers an always open door to chatter about whatever spins my wheels. Some people, though, don't have these outlets. So when they get in the presence of other people with disabilities, I imagine it's a relief to be in the company of others that "get" them. It seems some people require more opportunities to talk about disability matters than others.

Do you think it's ever possible to talk TOO much about disability-related topics? The only time I feel like I'm drowning in disability is if other aspects of a situation or my identity are being ignored. It irritates me when people assume that the most important thing I have in common with another friend who also uses a wheelchair must be our modes of transportation. While I really do enjoy the community of people with disabilities, it doesn't mean that my dinner conversation with Adam is always (or even often) centered being disabled.Whenever I face these sorts of questions related to "us", I really enjoy hearing answers from others. They make me think...and now I'd like you do the same:

When you are with other people with disabilities, do you naturally or mostly talk about disability-related subjects?

Do you think it's possible to talk TOO much about these subjects?

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  • Lieslmcq wrote on Jun 26, 2008 at 12:42 AM

    I just realized that I don't have any friends with disabilities. Huh. I joined the brand spanking new chapter of Democrats with Disabilities in Texas, so maybe that will change. Then again, it will only change if we have other things in common, like you and your friend.


    Back to your topic: I find myself wanting to use disability issues as an example way too much in class and in conversation. It fits so well and it is what I know, but I overdo it. It's sometimes hard to find that balance between positive references and saturation. Hmmm, something to think about.


  • bonnie wrote on Jun 26, 2008 at 9:11 AM

    I absolutely think it is possible to talk TOO MUCH about disability and disability issues.  As an advocate on a national scale in the 1990's to early 2000's, I was involved in multiple seminars, "awareness" events, conferences, CILO Board Meetings and volunteer work, and on and on.  It got so I almost forgot what the "real" world was about.


    Disabled people have their own set of issues, and to become part of society in general we need to be aware of the culture around us.  Most things do not relate to disability.


    I had to take a break from advocacy, and I am glad I did.  Also, many of the same issues come up again and again relating to disability:  access, understanding, pain, diagnosis, mind/body connections, ab vs PWD differences, sex/romance for PWD, etc.  These are issues, as they repeat over and over that can become an endless mind loop and stop further thought and reflection on other concerns.


    I don't advocate leaving disability as a topic, by any means, but I think we all need to find a medium to keep us grounded in what is going on around us.


  • Nanal wrote on Jun 26, 2008 at 11:55 AM

    I've never really thought about it........but other than disaboom.........I don't have any friends with disabilities. When thinking about it.....I think if I did.........we could only share......if we had more or less.....the same issues.......similar challenges.......otherwise......it would be the same connection......or NOT.........as any other new relationship. Was that clear ?.....I know what I was TRYING to say. Anyway.........it was good food for thought . ..........Peace and love........Norma


  • ducky01 wrote on Jun 26, 2008 at 8:18 PM

    Maybe it's because I'm still fairly new to being in a wheelchair, but I don't hang around with a lot of other disabled people when I'm out and about. I tried to make friends with others in the hospital, and we all exchanged phone numbers and promised to keep in touch, but it just never happened. I made a few efforts to call folks a few times to see how they were doing, but for the most part, while they were glad to hear from me, there was no interest in getting together on a social basis. I think I can understand that-we were all going through a traumatic change, and who wants to see someone who is a constant reminder of what you went through when you first became disabled?


    Also, and again, maybe it's because I'm still new to it all, I've found that I've become an almost rabid advocate for the rights of the disabled. It just seems like I see so much need that I never noticed before losing my leg, and now it's my duty to speak up wherever possible. Maybe that will lessen as I grow used to the world again, I don't know. In everyday conversation, I notice that a lot of folks do try to steer the conversation to my disability, and I try to steer the conversation to other topics. I think I'm still trying to find a balance of disability vs. normalcy.


  • Kara wrote on Jun 26, 2008 at 9:56 PM

    @Liesl I know what you mean-I have to keep my examples/associations in check too because I don't want to seem like I'm ALWAYS pulling the wheeler card. I also see so many parallels between racisim and discrimination against us. For some reason, people seem more responsive to SEEING racism but I try to keep the comparisons to a minimum cuz it gets people fired up at times!


    @Bonnie (waving!) I know exactly what you mean-I've needed and taken breaks before too. I guess like anything-sometimes we can become TOO entrenched.


  • Kara wrote on Jun 26, 2008 at 11:05 PM

    @Norma Totally clear to me. I think you are saying that you'd either have other things in common or not but even if it was just being disabled you might still have different experiences.


    @Ducky-I think you said it best about finding a balance. I guess that's what we're all after. I notice too when people seem to steer the conversation to or away from disability. Definitely gives us something to talk/think about!


  • BMWgirl wrote on Jun 26, 2008 at 11:52 PM

    oh yea, I think the topic is boring personaly, I have cp, life goes on end of story.  Not into the whole disabled studies/culture thing...


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  • Blake wrote on Jun 27, 2008 at 2:54 PM

    Upon reading your post, I tried to list in my head all the stuff me and my friends with disabilities talk about. We are all in a student organization at Mississippi State, so we do often talk about disability-related issues. I find that it just seeps into our daily conversations. There's no black and white usually. We could go from discussing a Starbucks addiction to annoying old (and inaccessible) buildings on campus.


  • okieflamingo5 wrote on Jun 28, 2008 at 4:06 PM

    the title caught my interest.  this is the first time i have responded and only my first week on disaboom.


    I was so involved with disability rights and athletics for so many years, and i would say my friends are about 50/50 some in chairs, some AB's, etc.


    But, i guess i am talking about support groups mostly.  I have attempted to join about 3 different ones.  but, it really was more a "I have the worst disability" or "I have it worse than you" kind of groups.  I don't get that.


    and, when able bodied friends, might complain about some pain they will say, OH i am so sorry, i shouldn't coplain when you are dealing with"  and on and on.,


    It drives me crazy.  I keep saying its apples and oranges (that expression probably dates me) but, people can complain, its healthy.  its the constant  "oh, pity me" that makes me think I just don't want to know you.


    Well, this was good,I hope that I find other statements that get me to do more online.  This is really new to me.