Kara
Kara
Kentucky
Female
Married

Attack of the Well Meanies

Posted: 11/16/2007 at 03:19 PM

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One of my first favorite posts here at Disaboom introduced me to this perfectly fitting term. Many of us are all too familiar with these folks, but here's my own definition:

Well Meanies come in a variety of styles. Some are curious and just want a closer look. Others are honestly ignorant that this is likely not our first time out in public. If we have safely arrived at our destination alone, there's a good chance we can get our own chair out or maybe even open a door! I'm sure some are unfairly labeled. While rare, there are still a few chivalrous civilians that probably do open doors and offer help to many people, regardless of gender, ability, or appearance. I also believe that some well meanies are simply lonely. "Helping" me will likely result in some small talk and it may be their only interaction with another person all day. I do try to remember this, but the unfortunate results sometimes can cloud my own well meaning ways.

 

Sometimes unfortunate results can serve as their own teaching moment. More than a few times, over enthusiastic well meanies have lifted my (thankfully empty) chair by the wheels. The wheelchair flips and the footrest whacks them right in the shin. I try to refrain a physics lesson on why it's generally not best to lift objects by their free-spinning wheels While it might be an important life skill, I think it would overshadow the real lesson I wish they'd learn: Ask before you help! Part B to this less: Listen to the answer.

 

Unfortunate results can also come in the form of leaving me much more irritable after our interaction. Many well meanies are completely oblivious to this effect of their behavior. Praying over me while I pump gasoline is awkward to say the least. The ever-faithful, "I was in a wheelchair once...." is also usually stated with good intentions, but...misses the mark!

 

It should also be noted that well meanies are not always people. They can also be messages, attitudes, and signs. They cross borders, occur in every language, and don't only bug people with disabilities. I've witnessed many well meanie attacks on mothers out with their children. This is definitely not to imply that I discourage people from offering help when a person asks for it or it seems to be the right thing to do. But again, ask and then listen. 

 

Here's a sign from across the world as discovered by one of my favorite bloggers who recently moved to China with her entire young family.

Rather random, but a little strange!

 

Here's another from within our own community. I respect this blogger but found this captioned image and the attitude it provokes distracted from the excellent resources it means to embellish.

Who knew you could read your way right out of the wheelchair? My overflowing bookshelves don't seem to support this idea, but maybe I missed the point.

 

Do you think I miss the point of well meanies? Should their intentions excuse their often insulting, interfering, and overbearing approach? Do you have survival stories of your own from close calls with well meanies? Share them!

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  • » Blog Archive » Attack of the Well Meanies wrote on Nov 16, 2007 at 1:31 PM

    Pingback from  » Blog Archive   » Attack of the Well Meanies

  • Tiffiny wrote on Nov 16, 2007 at 3:30 PM

    lol...great post, kara!

  • Melissa wrote on Nov 16, 2007 at 4:39 PM

    I wonder what the woman in the photo "did" to get her cursed disabled.  And, what book is she reading?  Hell, maybe we can read that for book club!  My least favorite well meanie line is: "Who are you here with/are you alone, Honey?"  Drives me nutty!    

  • Drew2 wrote on Nov 16, 2007 at 10:41 PM

    Great blog. You hit the nail on the head with this one.

  • Terrible Palsy wrote on Nov 17, 2007 at 4:15 AM

    wow.  what you say is so true.  And that sign is really strange,

  • dave wrote on Nov 17, 2007 at 8:13 AM

    Only bad experience with a well meanie came when a guy tried to help me up over a curb backwards.  He didn't tilt the chair back, left the front wheels about 6" lower than the rears ones and I almost slipped right out.  He said he'd helped people before so it took me by surprise.

    I'm sure they all mean well so maybe some specific instruction from us might help when the time comes.

  • LeAnne wrote on Nov 20, 2007 at 2:32 PM

    Some years ago, a friend of mine with cp was having coffee in a restarunt. A man walked by leaving a note on his table.

    It read:  CALL ORAL ROBERT!

    My friend just laughed.

  • Daisies1 wrote on Nov 20, 2007 at 4:50 PM

    I don´t really get it why everybody is so opposed to basically nice people. The post about the well meanies was one of the first I´ve been reading here, and I was fairly distressed that newly disableds actually get warned about them.

    You know, I usually manage stairs alone, scooting up on my butt. If I don´t, that means I don´t want to, or I can´t. Any case, I depend on strangers who usually would have no business dragging me into buildings other people had failed to make accessible. And if somebody takes my chair up for me it means a great relief. So I sure point out how to carry a chair. I don´t know what it is that people always take chairs by the wheels, but I know they do. And it doesn´t hurt me a tiny little bit to instruct them as to how it´s done properly.

    And what´s so bad if people tell you they have been in a chair once themselves? What would be mean about that?? Sure, my daughter and I had many a good laugh about these, but of course never in their face.

    My daughter by the way. She is one of those people who offer help, and then tell "I know somebody in a wheelchair too..". Partly because she´s just turned 18, and many wheelchair riders think she doesn´t have it in her to help them, but also because she wants them to know that she at least is linked to the disabled world.

    She´s such a nice girl, always ready to help. And it saddens me a lot that she might be dismissed as a well meanie. I, and my life taught her to respect disabled people, and I simply can´t see any reason why she wouldn´t deserve the same respect.

  • Kara wrote on Nov 22, 2007 at 12:01 AM

    While I think that some of your thoughts about my post have alot to do with a simple difference in opinion we've shared in the forums, I'll go ahead and respond.

    I'm not opposed to nice people. I'm opposed to pushy people who treat me like a child. If your daughter doesn't do that than she's not who I'm writing about. Remember-blogs, forum posts, etc. aren't always directed at personal people in your lives. I'm communicating about issues that affect me on a daily basis. I appreciate the examples you provide by sharing your children's perspectives (here and in other threads) but it's not really fair to assume that I'm speaking about them when I'm not.

    I'm also not opposed to sincere expressions of someone's connection to the disability community. "I was in a wheelchair once" out of the blue when I'm grocery shopping or on a date does NOT qualify as a serious connection in my opinion....no one who really "got it" whether they were actually disabled themselves or not would say that. Many of the people that I've encountered that say this either have the "I conquered it" attitude which is convenient when you merely stubbed a toe, used a wheelchair for a week, and not walk OR they'd like to harp on how hard it is to push a wheelchair for an hour. Neither of these interactions leave me feeling like an equal member of society.

    Nice intentions doesn't excuse paternalization. I don't believe I should accept discrimination with the response, "Oh well-you meant well."

  • nielli wrote on Nov 27, 2007 at 6:12 AM

    Ok, I actually see you in my mind without a wheelchair. It is a chair. So, I actually listen to those who need a little help...and wished in their innermost heart that they didn't. I think you have reached a point in your life where you have finally accomplished your goals. You don't need help, or at least that is your hope. I wish that for you, just as I wish it for myself.

    Don't have an opinion on you being right or wrong.

    I do have experience with a person over 35 years ago. As her nurse trying to make her comfortable in her bed, my young patient started crying. She was so miserable. I waited for her to talk about it and she did. I could not get in the swinging door and no one would help me. Why? I explained to her from my having the experience of having been burned over half my body and having scars, that people are afraid. They don't know what to say and they don't know what to do. So, I suggested that she ask for help. And as we talked, she had ideas of her own. Just stepping into the adult world, she was eager to make a place in life for herself. I suggested that she write a book about how to treat those who seem disabled. Months later, she had to be treated again on my floor of the hospital. I walked in and there was a happy, total person sitting up in bed with her wheelchair folded in the corner. She was smiling and talking on the phone to someone.

    I was leaving the room when she hung up the phone and almost yelled, I did it. I wrote the book.

    I looked at her and remembered. I am sure my face looked startled that a little message that was really meant to get someone out of themselves had actually resulted in a book.

    She said many people had read it and it was now up for sale. I was in awe. The folded wheelchair in the corner did not define who she was or wanted to be. The book did.

    And now I hear the opposite opinion from someone the same age with the same enthusiasm.

    Problem is...there is no right or wrong answer. I do agree that helpful people should ask if you need help. But, I do think that helpful people should be recognized as helpful...nothing more...not condescending. It is just a chair, it isn't you.

    I was told when I was seven that I would never walk. I did. Now in my ancient stage, I can barely walk, but that wheel chair sure feels better than lymes pain and contractions. I still hate that people think they need to help me, but that is my slow ability to accept my own disablity. So, I guess I am somewhere in the middle...thanks for listening. Ni