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How do you hold a Health and Wellness Roundtable without mentioning disability?

Posted: 8/25/2008 at 02:20 PM

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This morning, the Disabled Politico team attended a Health Roundtable focusing on Health, Wellness, and Prevention, as part of the Rocky Mountain Roundtable series in connection with the Democratic National Convention. Participants included Bruce Bodaken, Dr. Denis Cortese, Michael Critelli, Sen. Tom Daschle, Trace Devanney, Dr. Patty Gabow, Jeff Kindler, Dr. Jeanne Lambrew, Thomas Menino, Gavin Newsom, Dr. Samuel Nussbaum, Barbara O'Brien, Dr. Stephen Oesterle, Linda Pryor, Kenneth Shachmut, Kevin Sharer, Hilda Solis, and Dr. Reed Tuckson. Sounds like a great place to hear innovative ideas about the future of disability policy, right?

 

Health, Wellness and Prevention - A Rocky Mountain Roundtable

 

Wrong. Though the panel participants mentioned diabetes, cancer, and other chronic conditions repeatedly, not a single panelist mentioned community-based care, the cost of medical goods like prosthetics, or even stem cell research. The panel discussed at length the cost of care for chronic conditions, yet the savings possible by de-institutionalizing adults with disabilities and providing home-based services were not noted. Even the cost of pharmaceuticals was mentioned only in passing, with no attention paid to the rapidly rising costs of drugs such as the injectables that can slow progression of chronic conditions like Multiple Sclerosis. With one in six Americans living with disability, the lack of attention to disability issues left a gaping hole in the panelists' proposals.

 

The panel focused primarily on prevention of chronic disease through proactive wellness programs, including education of families and the provision of healthful foods in  school lunchrooms and employee cafeterias. Boston Mayor Thomas Menino suggested that the new President should use Massachusetts as a model for designing a universal health care plan for the nation, and San Francisco Mayor Gavin Newson discussed his city's groundbreaking health care program that provides coverage to children ages zero to twenty-five, and the adult health care program that has provided care to 40% of San Francisco's uninsured.

 

Colorado Lieutenant Governor Barbara O'Brien discussed the design of communities and neighborhoods to make healthy choices easier, including making streets safer for children bicycling to school and expanding cycling and pedestrian paths. Here again was a smart idea that could also expand access and community participation for those with disabilities, and again the speaker failed to take a moment to  mention that pedestrian paths would also help persons with disabilities access the community, in turn reducing costs by improving health as Dr. Patty Gabow defines it-- "The mental, physical, and spiritual state that allows an individual to reach their full potential and engage fully in the community."

 

A roundtable of top thinkers and innovators in the health care industry produced many bright ideas. However, without the merest mention of the disability community's significance or the unrealized potential of individuals  currently disabled more by the lack of community-based services than by their underlying conditions, many in the audience were surely left skeptical about the panelists' committment to truly universal health care.

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  • Beverly wrote on Aug 25, 2008 at 3:09 PM
    Isn't that just typical.
  • cre8tivewmn wrote on Aug 25, 2008 at 3:14 PM
    Sounds as if those of us who are already disabled are supposed to stay out of site and out of mind. No amount of "healthy choices" could have prevented my disability. The same is true for many other disabling conditions like MS. And what about people who are disabled to do accident or war? I'm sure eating more fruit as a child wouldn't have changed their outcomes either.
  • Alexa wrote on Aug 25, 2008 at 4:49 PM
    Yikes. :(
  • dizzed.com wrote on Aug 25, 2008 at 7:13 PM
    A first hand account of the Health Roundtable held this morning at the Democratic National Convention (DNC). Disability policies were largely ignored.
  • bluetigermo47 wrote on Aug 25, 2008 at 8:19 PM
    I have to say I'm really disappointed as well. As one person mentioned in the comments "Sounds as if those of us who are already disabled are supposed to stay out of site and out of mind." I battled my weight even as an abled-bodied person. I wasn't obese, just a little overweight. Would losing a few pounds earlier in life and making healthier eating choices slowed down my developing rhuematoid arthritis and degenerative joint disease? Maybe for a few more years, but not completely. I'm also disappointed that this round table of experts failed to notice what I and others in the disability community face everyday-paying for the wear and tear on durable medical equipment like wheelchairs (power and manual), prosthetics and other goods that allow us to stay independent. I accidentally broke the seat supports in my manual chair while trying to get it in my rooftop carrier. The bill-$196 (for manual chair repair costs and labor) which was not covered by insurance. It came out of my pocket. I live independently, thanks to some access to community-based care I had during recovery from major surgeries. I didn't have to stay in a nursing home, yet I know friends who have MS who know they would be happier and healthier in a home setting, rather than settling for life in a nursing home. Although they continue to fight to get funding for home improvements and arrangements for home care, they run into one trap after the other. And what about the cost of meds. Fortunately, I don't use that many prescriptions myself right now, but I feel for those who have to have five, six, maybe seven prescriptions or more a month to survive? It's a shame the panel didn't talk about that at length. I have to agree with Beverly: when it comes to medical experts discussing possible health care solutions and the disabled, it's typical that they just don't get it.
  • Amismom62 wrote on Aug 25, 2008 at 8:53 PM
    So no mention made of how much the CCA can save. Who sponsored the Roundtable, the nursing home industry lobby?
  • mktbob55 wrote on Aug 26, 2008 at 10:27 AM
    And you are surprised, why? PWD's (People with disability) are not trendy. We remind people of what could happen and this scares them. Better to give them lip service but don't look at them as people.
  • RIredwheel wrote on Aug 27, 2008 at 12:58 PM
    DON"T GIVE UP!!! This tunnel-visioned view of health care policy is discouraging but not surprising. What we cannot do is let it convince us to give up. There is a growing number of people with disabilties who need a health care system that INCLUDES us but and many in power simply choose to ignore that fact. So we must all keep speaking up and showing up--all the while, supporting our brothers and sisters who are experiencing firsthand the devastating effects of outdated, inadequate policies and budgets. To quote Hillary Clinton from her speech last evening: "Don't ever stop--keep going. Even in the darkest of moments, ordinary Americans have found the faith to keep going." We owe it to past activiists and future generations of people with disabilities to fight this critical fight--and we WILL win it!!!
  • Whitney wrote on Aug 28, 2008 at 11:22 AM
    The message it sends me is that disabled persons are not as important to the Dems as they like to say to us on this site. Hmmm.
  • Dona O wrote on Aug 28, 2008 at 1:43 PM
    In light of what you're reporting, and the fact that CNN reported last night (Wed 8/27/08) that 4% of the people at the DNC have disabilities, I would strongly recommend that everyone bombard their legislators and the Obama camp citing the fact that the disabled community was not mentioned during the Health and Wellness Roundtable. I would hope that it was an oversight, but if so, it is too great a mistake. I daresay they don't care especially since I am looking to this party to make changes that will benefit the disabled, especially my multiply-handicapped daughter.