Disability Activism & Advocacy

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  • permalinkSuicide for People with Disabilities

    DayAlMohamed

    Posted on: Tue, Oct 21 2008 12:48 PM

    The following is an excerpt from my disability policy blog:  Day In Washington (http://dayinwashington.com/?p=162)  

     

    Having been someone with a disability for almost 15 years and considering myself a successful and happy individual overall, I have to admit that it still shocks me when I see and hear people say things like, “I would rather die than live with a disability.”  It is more than shock, I find it disturbing.  Why?  Because it negates my entire life.  It is like saying everything I’ve done and everything I do now, as a person with a disability, my life, is meaningless. It isn’t worth living.

     

    The post on my site (www.DayInWashington.com) has a video from Saturday on CNN/Europe. My apologies in that I haven’t completed a transcript yet, but I will get it up as soon as I have completed it. In short, the story is about a young man, 23 years old, who after being paralyzed from the chest down, a year later travelled to Switzerland to take his own life.  He didn’t want to live a “second class existence.”

     

    Right now, I just wish the young man had had the opportunity to really talk to other people with disabilities. Those who’ve been there and who can relate and can let him know that there is so much more to living than just a “fully functioning” body. The waste, makes me angry and the fact that there is a debate around the issue makes me even angrier. The assumption is that without a fully functioning body, people (and people with disabilities) have nothing to contribute to society and this world.

     

    Thoughts?  Comments? 

     

    Feel free to take a look at Day In Washington  (http://dayinwashington.com/?p=162) for the full article and video about Daniel James' life and his death.

     

    www.DayinWashington.com
    Home of the Disability Policy Podcast
  • permalinkRe: Suicide for People with Disabilities

    ArkanzanWheeler

    Posted on: Tue, Oct 21 2008 1:13 PM

     I will have to admit I was in a slump for about 6 months after I got home from rehab, I hated my life and wished I did not live through the accident.  But suicide is never the right answer.  My friends were worried about me, they even thought about searching my house for all my guns but they knew that I would still have a few that are really hidden and if I really wanted to kill myself then I could.  I sat around the house on the comuter, video games, or TV and hated the whole situation.  Really my dog was my only company, few people would stop by but I was in such a bad mood they would not stay.

     

    Then I got tired of the pity party and started getting out of the house, I joined a support group that really helped wether they knew it or not.  Just getting out and interacting with other people is what you need.  Now I am stating my life over, only this time I have the memories of my past life (before the accident) so this is a fresh start.  I am going to college, dating a girl for a couple years now, building new things, on a NWBA team (was on the Rollin Razorbacks and now the Little Rock Reline), and just getting out.  I feel I am just getting back up to speed to where I was before but really I am ahead since I am doing things better now.  Before I was just into racing and partying, now I feel like I am trying to make something of myself and get some changes done around here.  You can not focus on the 10% you lost, just work with the 90 % you still have!

  • permalinkRe: Suicide for People with Disabilities

    TriDog

    Posted on: Tue, Oct 21 2008 1:35 PM

    As usual, I'm gonna jump off the band wagon here.  But at least think about what I'm saying before you beat me up.  

     

     

    I think you need to look at where a person is coming from to understand their feelings and opinion on this issue.  Was this young man someone that relied on his body for his income and wellbeing and that of his family?    There is also a “quality of life” issue here.  This means something different to everyone.  Who knows what it meant to this young man?   Maybe he lost everything that was “him”.  Is it wrong to base your self worth on what you can and cannot do?  That depends on your point of view.  In the larger picture, perhaps we should be thankful that this guy had the option to go to somewhere and they could help him end what he saw as his suffering.  I can’t say that if I ever became a burden, finically or physically, to my family I might not think of taking that option.  I don’t just don’t know.  How can any of us really know?

     

     

    Day Al, I think you’re more insulted because of the statement that “he didn’t want to live a second class existence”. To you and me, it’s not a second class existence.  To him, it was.  Again, it all depends on your point of view. 
    "If you can't fly, then run. If you can't run, then walk. If you can't walk, then crawl, but you must keep moving forward." - Martin Luther King Jr
  • permalinkRe: Suicide for People with Disabilities

    DayAlMohamed

    Posted on: Tue, Oct 21 2008 8:53 PM

    I don't know, Tri Dog.  I can see your point but would have to say that, I could only agree with it if there was a "greater level of equity and knowledge" (it's in quotes as it is a somewhat vague term) regarding disability.  We often talk about how the biggest obstacles are not really disability-related but attitudinal and societal barriers; people's misperceptions and stereotypes of disability. 

     

    If someone is making a decision about the value of their life based on those stereotypes and misperceptions, then how can we believe that it truly is a "quality of life" issue?  That individual's decision isn't made on the facts of what life is like with that disability but on what they think that life would be like.  Prior to my disability, I had similar thoughts.  And even today, there are far too many people who have no idea how a blind person can use a computer or be an engineer, or how a wheelchair-user can have sex and so the assumption is that much of life is cut off when someone acquires a disability. 

     

    I think, if there was a mechanism to ensure that individuals who acquire disabilities are given the actual knowledge and information of what their life would/could really be like; if there was some sort of "buddy" program where they could talk to other people like them, or at least gain some insight that goes beyond the usual stereotypes, then I would very firmly agree with you.  I think that is why I am such a strong supporter of some of the disability-sports programs.  I have seen what that can do for many vets coming back from overseas.  Sports (fencing in particular) let me see that I could remain active and I wouldn't lose that athleticism that, to me, was so important to my life.

     

    William Peace over at Bad Cripple (http://badcripple.blogspot.com/2008/10/daniel-james-in-uk-news.html) I think explains it better than I can.  Excerpt below:

    "In the Herald Colette Douglas Home wrote a story entitled "Was Daniel's Death the Final Act of Parental Love?". She stated that "sporting men of 23 are like unbroken colts. They are vital, forceful personalities; physical creatures with boundless energy. Their heads are filled with dreams and ambitions". At no point in my life have I ever felt "condemned" by my inability to walk or move my legs. The vitality that Homes describes has more to do with youthful enthusiasm than sporting life. Indeed, it appears as though only physically fit young men are capable of dreaming big and possess boundless energy. This outlook she assumes is beyond the ability and imagination of disabled people.

    ...Mr. James was injured just 18 months and was not terminally ill. He had everything to live for that any other 23 year old looks forward to who can walk. Again, this line of reasoning is based on the assumption death is preferable to life as a disabled person. Let's try changing the variables and see if thoughts of suicide are considered "normal": What if a child was clinically depressed, bipolar, or raped? Would suicide be considered an option?

    ...What I keep returning to is not the discussion about the parents role in their son's death but the social failure that enabled it to take place. This social failure will not garner any headlines, prompt people to get into a fierce debate about quality of life issues, or make people turn on the TV news. The only way to change the social perception of disability and prevent other deaths such as Mr. James is for society to accept and incorporate disabled people into mainstream society. For that to happen, accessible and affordable homes and mass transportations must exist. Barriers to inclusion in the work force and in schools for disabled people must be stopped. In short, disability must become ordinary, a part of life for some but certainly not all. When I can leave my own front door and not worry about being accosted socially than I will know equality exists. Until all disabled people share that same sense of equality needless deaths like Mr. James will continue.

    www.DayinWashington.com
    Home of the Disability Policy Podcast
  • permalinkRe: Suicide for People with Disabilities

    Tony

    Posted on: Tue, Oct 21 2008 9:21 PM

     I can see what both of you are saying and both make sense looked at it in that vein of light. My short two cents worth. I personally do not believe in suicide for religious reasons, however I do support someones right to end their own life if suffering since nobody but that person knows what they are going through. I would however never be able to assist someone.  

  • permalinkRe: Suicide for People with Disabilities

    PerfectlyImperfect

    Posted on: Tue, Oct 21 2008 9:32 PM

    I think this is an extremely complex issue, to say the least. I agree with Clark that religiously, I am against it. But, when you get into situations as severe as Terri Schivo, where there is seemingly no chance of recovery, I don't think taking someone off the support keeping their body(notice I said body and not the person)alive, is really assisted suicide. It is because of the technology that we have that people like that can be kept alive; otherwise the person would die naturally. I think the medical technology we have can be a great thing, and can save a lot of lives. But I also think that they can extend lives of some that God is ready for them to leave this world. Am I making any sense?

     

    In short, no I don't agree with someone saying, 'ok I'm tired of suffering so I'm ready to die'. However, when someone is in a situation such as a vegetable state, I think that I can agree with their family choosing to take them off any support keeping their body alive.

    "Sometimes what you want isn't what you need and what you need isn't what you want.. This is often difficult to accept.."
  • permalinkRe: Suicide for People with Disabilities

    DSB

    Posted on: Tue, Oct 21 2008 9:34 PM

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    As someone that just voted for a death with dignity law in my state that is very close to what Oregon has and they are not assisted suicide laws they are Death with Dignity Laws. People may or may not agree with my position but it comes down really to me and the quality of life I feel I might live as I am. Fir example I have had several friends die of cancer even after treatment and watch their quality of life simply slip away so of I ever get cancer I highly doubt I will seek out treatment for it. That is my life choice as it is my choice to say ok my quality of life for me is so bad I’ve lived long enough and that is it.

    Personally I feel the only reason this even made a news story is because the person did have a disability how stable he was before or after it is at best a guess and to actually debate the issues is pointless. People that wish to end their lives do everyday because that is what they truly want and there is also some conjecture that people that do so because they have that much control over their own live they are smart enough to know their options. Sorry to say 9/11 taught us that many people knew they would not get out and jumped they had a choice suffocate in the smoke burn with the fire or jump they made a choice we all have them. There are not variables to change the man made a choice and would do so again. So are my thoughts on the matter.

  • permalinkRe: Suicide for People with Disabilities

    Kara

    Posted on: Tue, Oct 21 2008 11:44 PM

     Working in the mental health field has given me a different perspective on this issue...It hasn't changed my ultimate opinion but it's made me realize that what's really missing from this argument of whether WE should have the "right to die" or not is EQUALITY. I've worked with dozens of highly suicidal patients who are entirely 100% convinced at the time that they want to die. They will try any means necessary-even ones that would lead to painful and suffering deaths. Our society, medical, and even legal system is set up in a way to do whatever is necessary to prevent them from ending their life. It's not an option for them and some have equally questionable quality of life concerns (whether it be extreme trauma that haunts them every second of the day or a complete lack of resources and realistically little way out). Whatever the case-our society believes that THESE people should be given the time/treatment/resources necessary until-even if for briefly before another relapse-they make the turn and recover to a non-suicidal state.

     

    Why isn't this same treatment afforded to people with disabilities? Only if someone has a disability does it even become a question. We deserve the same time, treatment, and resources until we see reason to live. A comorbidity of severe depression and physical disability shouldn't be a sentence (or a "right") to death.