Fibromyalgia

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  • permalinkRe: Living with the pain of fibromyalgia

    squabwithfibro

    Posted on: Sat, Jul 4 2009 3:32 PM

     Carol,  Savella sounds promising for those of us who suffer with the Fibromonster. Thanks for sharing the article.

     

    Jim,  They always find polyps in me too.  The great thing is that they take care of the problem right then!   I know it's no fun, but aren't you glad it's out of the way?

     

    Welcome,  Merrie!  I hope you enjoy Disaboom and what we  call our Fibro. Village.  Nothing to add.....Mayor Jacksaid it all! 

     

    Gentle Hugs & Prayers,

    Valerie

    squabwithfibro
  • permalinkRe: Living with the pain of fibromyalgia

    finallyfifty

    Posted on: Sat, Jul 4 2009 5:10 PM

    happy 4th to all. I am having a lazy day with the computer and the TV. happy birthday to Peggy and Valerie. Welcome Merrie. It sounds like you have been real busy Jim. Good to hear that you have a clean bill of health (except for the usual). I hope that everyone has a great day.

    finallyfifty
  • permalinkRe: Living with the pain of fibromyalgia

    Nicole

    Posted on: Sun, Jul 5 2009 4:40 AM

    well, surprise surprise, it's nicole.

    i stumbled back to check on a few of you after i received a sweet ecard from finally fifty. i know, i know, i swore i wouldn't, but... i want to say that everything has been positive since i last 'saw' you all. unfortunately i lost a very very dear uncle due to complications following a stroke, broke up with the psuedo boyfriend for good, was over medicated and had to have a babysitter because i couldn't negotiate the simplest things alone and my mother who just recieved a clean bill from breast cancer has lesions on her thyroid. oh, and i tried to off myself during all the hub bub. don't worry, i've been working with 2 doctors and i have an appointment to see a shrink(oh goodie) next week. needless to say- rough times.

    i wanted to say something that i've been wanting to say since i was last here. i must say that jack, you are right, i don't see the little happy things. not when my loved ones are dying one after the other and i am coming unglued. i don't think many people do, truly, do you? i do try....i know it may be hard to believe, but i am a very thankful,generous,giving person who is proud that friends always feel that they can come to me with a crises. i just hit that speedbump that most of us go over at some time in life. i turned the lights out, pulled the covers over my head and cried for a month. has anyone NOT done this? if you say you haven't, then you probably will at some point (sorry, just fact).

    so, i hope that in the future, you will all be as comforting to newbies and each other as i have seen you be. i hope that you don't jump to the conclusion that it is solely someone's point of view that is causing them such distress. sounds like when people think fibro is 'all in our heads'. i also want you all to know i miss you very much and think about val's fireworks picture, how your families are doing, how you are celebrating holidays, certain people's love of purple;), beautiful pictures of Tony's garden and all the love and support you have given me. i hope things go well for everyone and myself included. i have gone exactly one month without a death- that is as positive as my outlook has gotten thus far....but, i'll get there....

     

    much love and all the luck in the world:)

    nicole xoxo

     

     

     

    "Gonna start a revolution from my bed..." \m/(>.<)\m/ Oasis

  • permalinkRe: Living with the pain of fibromyalgia

    Hawkeye46

    Posted on: Sun, Jul 5 2009 4:30 PM

    For those who like fireworks, you can have them on your computer.  Check out this URL:

          http://www.fireworkspop.com/liberty.htm

    To make it work, put your pointer in the sky above Lady Liberty anywhere, and click a mouse button.  Turn up your sound!  The more often you click, the more often you get fireworks.  Enjoy!

     

    Jim

  • permalinkRe: Living with the pain of fibromyalgia

    squabwithfibro

    Posted on: Mon, Jul 6 2009 12:52 AM

     Fifty,  Thanks for the good wishes.  I hope you had a nice Fourth! 

     

    Nicole,  Good to hear from you!  I'm sorry to hear about yet another death......but wonderful that you have been a month with none..... I like your sunset picture.....very peaceful. I hope it represents a more peaceful you.  That is something I'd wish for all of us.  Inner peace. Contentment can be quite the elusive butterfly, huh?  It's still a good goal.

     

    Jim,  Thanks for the fireworks link.  Very cool!  Since I didn't see a fireworks display, your link was the best I saw this year!!! We have a neighbor in another subdivision who shoots off some nice ones.....but it rained.....hard!  So I didn't even step foot out of the house! 

     

    I hope everyone had a safe, nice holiday weekend.

     

    Gentle Hugs & Prayers,

    Valerie

    squabwithfibro
  • permalinkRe: Living with the pain of fibromyalgia

    peggyann

    Posted on: Tue, Jul 7 2009 11:57 AM

      Hi Everyone,

    Hope you all have a great 4th of July we did . Where is everyone? I know its the summer and you all are outside getting some fresh air  (right?) how is everyones garden,my tomtoes are almost ready to pick same as my cucumbers ,peppers not the eggplant yet .T

    his is the first time i did carrots so i dont know when to start picking them,does anyone know?

     Its been 7 days since my last cigarette and the only time i do miss it is when i have my first cup of coffee,I have been eating lots of hard candy,This morning i when to the bank and they have lollpops out and yes I took one and dont you know I broke my botton back tooth just what i wanted to do so when i called the dentist I  got right in and now its all better!! I only have 15 more days before my knee replacement so I dont need any more dentist appts.

    OK I have great news,back on June 26 I went for my SSD in from of the judge and today I got a letter in the mail from SS and I got it !!! I am very happy it only took 31/2 years  There are pages after pages of reading this report and when i got to the judge report there wasnt one mention about my fibro,it was all on my knee,now the doctor that did the 5 operations did say the most i could walk is 2 hours in one day and that was before my replacement. The judge also said that since my replacement wasnt put in right there is no way I can walk even that long. Now I heard or read that it now takes up to 5 months to get your first check will just have to wait and see.

     I hope all of you are pain free, Hugs Peggy

    Peggy
  • permalinkRe: Living with the pain of fibromyalgia

    sandyfreytag

    Posted on: Wed, Jul 8 2009 12:16 PM

     Hi Merrie, Welcome to our little Village. Sorry it took me so long to get a word out to you. I have had a flare up, because I did stupid things this last weekend (the 4th). I have this site I would like to share with you that you can then share with your family and friends. I hope you get some help from this. 

     

    http://www.lifeinpain.com/node/2151

     

    Take Care and Gentle Hugs, Sandy

    Don't compare your life to others'. You have no idea what their journey is all about.


  • permalinkRe: Living with the pain of fibromyalgia

    squabwithfibro

    Posted on: Wed, Jul 8 2009 4:35 PM

    peggyann:

    how is everyones garden,my tomtoes are almost ready to pick same as my cucumbers ,peppers not the eggplant yet .

    This is the first time i did carrots so i dont know when to start picking them,does anyone know?

     

     

    I've had green peppers for a while.  I have had a few tomatoes from my little plant!  

    It has been years since I've harvested carrots.....from what my memory tells me, Peggy, you should have some.  You go by the size of the green part......you will just have to pull some up to see if you are happy with the size.  Make sense?  

     

     

    peggyann:
     Its been 7 days since my last cigarette

     

    Good for you!!  You go girl!   Cool

     

    peggyann:
    This morning i when to the bank and they have lollpops out and yes I took one and dont you know I broke my botton back tooth just what i wanted to do so when i called the dentist I  got right in and now its all better!!

     

    What a bummer!  It's great that it is all taken care of now though!

     

    peggyann:
    I only have 15 more days before my knee replacement so I dont need any more dentist appts.

     

    I hope this doctor does a better job than the last one!  Keep us posted?  Good luck to you as you face your second knee replacement surgery!  

     

    peggyann:
    OK I have great news,back on June 26 I went for my SSD in from of the judge and today I got a letter in the mail from SS and I got it !!! I am very happy it only took 31/2 years 

     

    CONGRATS!!!

     

    peggyann:
    Now I heard or read that it now takes up to 5 months to get your first check will just have to wait and see.

    I can't remember how long it took.  That's great news though!  It seems to me  that having more than just the fibro wrong with us makes a difference in qualifying for SSDI.  

     

    Sandy has a fun thread out on the Discussion boards.....check it out!  Maybe even contribute!  :)

     

    I get a lot of health related articles in my e mail.  Here is one written by a woman regarding her life with Fibro.  Of course, her experience is hers.....we are each unique, but I thought you might enjoy reading her point of view.:

     

    Living Well With Fibromyalgia

    By LindaJHutchinson
    Fibromyalgia and the Stress Factor
    Stress. It's everywhere we turn. But for Fibromyalgia patients, stress increases our pain levels, muscle aches and general soreness and brain fog.
     
    My husband has been the major breadwinner in our family since '04, when I became unable to hold down a full-time job. He recently lost his job. He'd been with a good company for several years. We enjoyed the steady paychecks and benefits. Now we're without that weekly paycheck--and health insurance. 
     
    Husband and son have started a new company, Big Boy's Toy Transport, LLC. They're doing well right out of the gate and I'm proud of them for what they've already accomplished.
     
    The stress of the job loss, lost health insurance benefits, having both of them home for nearly a month while they awaited registrations, legal authority, insurance coverage, and everything else that goes with starting a trucking/transport company, has taken its toll on all of us.
     
    My body has been in a continual state of Fibromyalgia-caused muscle spasms, body aches, exhaustion, brain fog, and general malaise for nearly a month. It's all due to the stress-factor.
     
    Add in the aching joints and buns-on-fire caused by osteoarthritis in my spine, hips, and knees, and you have one big arse-kicking situation worthy of a week-long combo of hot baths, cold packs, ease-into-it stretching exercises, drugs, and bed rest.
     
    I feel a propped-up-in-bed read-a-thon coming on. That is NOT what I should do, but it's what my body is telling me it wants to do.
     
    Sometimes I just want to give in to this dreadful disease and allow myself the license to not do anything that causes more pain. I want to shut myself away--and shut out Fibromyalgia and osteoarthritis. I want to repeat most of the things I've done in my lifetime over and over again. Without limitations on mobility. Without aching. Without soreness. Without the sizzling nerve endings that start in the middle of my back and spread down over my buttocks and half-way to my knees.
     
    If I'd known I'd be disabled in my mid-fifties I'd have had much more fun along the way, and certainly would have taken more risks. I'd have overcome my fear of heights by skydiving. I'd have taken up scuba diving and snorkeled with the sharks. I'd have ridden more rollercoasters.
     
    But, I didn't do those things because I didn't want to injure my body. HA!
     
    Self-talk: Breathe deeply. Several times per day. Practice stretching to increase mobility. Several times per day. Rest when needed. Take pain medication sparingly. Lounge in hot baths. Keep my mind active and on the goal.
     
    I'll beat this raging flare of stress-induced fibromyalgia and osteoarthritis. One bout at a time. 
     

     
     
    Published: 7/1/2009 8:27:00 AM by LindaJHutchinson
     
     
    I can relate........you?
     
    Gentle hugs & Prayers,
    Valerie

     

     

     

     

     

     

     

     

     

     

     

    squabwithfibro