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The Boy In The Bubble

On Wednesday I was finally admitted to the Royal Brompton Hospital...

Filed under: Muscular Dystrophy, Disability, Ventilator, NHS, doctor
Still Ticking Along

Yesterday I made the trip to Kings Hospital for the specialist...

Filed under: Muscular Dystrophy, Disability, NHS, doctor
That Was The Year That Was

As we slide down the razor blade of life (as Tom Lehrer had it...

Filed under: Muscular Dystrophy, family, Disability, friends, Blog, Christmas
Blackout - Call 999

I feel sufficiently recovered to tell you about the events of...

Filed under: Muscular Dystrophy, family, Disability, Children, Ventilator, NHS, lung infection, bed, Blog, Christmas
Padlocked

So there I was, bossing the children around. “Clear the table...

Filed under: Muscular Dystrophy, Disability, wheelchairs, technology
Take It On The Chin Strap

Now the gods of medicine mock me. On Tuesday I made my way, with...

Filed under: Muscular Dystrophy, Ventilator, NHS, lung infection, doctor
A Pain In The Back

This is my first post for a week. There is a reason. I've...

Filed under: Muscular Dystrophy, Disability, wheelchairs, Blog
In A Glass Box

Last night Polly, the light of my life, had been invited to perform...

Filed under: Muscular Dystrophy, Disability, Children, Blog, How To Be An Inspiration
A Matter Of Faith

As a consequence of going Israeli dancing last weekend Polly...

Filed under: Muscular Dystrophy, family, wheelchairs, faith, Blog
Polly Ate The Table Leg

As this blog cruises past entry number 200 (at How To Be An Inspiration...

Filed under: Muscular Dystrophy, wheelchairs, clown doctor, How To Be An Inspiration, technology

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