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The Boy In The Bubble

On Wednesday I was finally admitted to the Royal Brompton Hospital...

Filed under: Muscular Dystrophy, Disability, Ventilator, NHS, doctor
Cometh The Man

A few weeks ago we were assessed by a surveyor who came and told...

Filed under: Disability, housing, MP
Still Ticking Along

Yesterday I made the trip to Kings Hospital for the specialist...

Filed under: Muscular Dystrophy, Disability, NHS, doctor
That Was The Year That Was

As we slide down the razor blade of life (as Tom Lehrer had it...

Filed under: Muscular Dystrophy, family, Disability, friends, Blog, Christmas
Blackout - Call 999

I feel sufficiently recovered to tell you about the events of...

Filed under: Muscular Dystrophy, family, Disability, Children, Ventilator, NHS, lung infection, bed, Blog, Christmas
Padlocked

So there I was, bossing the children around. “Clear the table...

Filed under: Muscular Dystrophy, Disability, wheelchairs, technology
A Long Dark Midnight Snack Of The Soul

On Saturday Paul and Darren (also known as Rock God and Bass...

Filed under: Disability, Children, NHS, friends, Marriage, bed, Blog, How To Be An Inspiration
A Pain In The Back

This is my first post for a week. There is a reason. I've...

Filed under: Muscular Dystrophy, Disability, wheelchairs, Blog
In A Glass Box

Last night Polly, the light of my life, had been invited to perform...

Filed under: Muscular Dystrophy, Disability, Children, Blog, How To Be An Inspiration
Dancing And Dimensions

On Sunday it was Polly's birthday. For some reason she decided...

Filed under: Disability, Children, Birthday, housing

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