For a long time, I have been fascinated by the idea of
pity. As people with disabilities, it is
something that we experience every day.
While true empathy is something that this world does not have enough of,
pity seems to be something altogether different. In my experience, empathy, the ability to
place yourself in someone else’s position, causes a person to want to
understand another’s struggle and help them with it. Empathy drives a desire to ask questions about
what a person needs and how their life could be improved. Pity, on the other hand, has no element of
common understanding. Pity is not in the
business of asking questions, but rather imposing answers. Someone who has pity on another seeks to
assert themselves in a position of dominance, showing the person who is the
object of their pity that they are, and will always be, subjugated.
Until very recently, public policies and social norms
dealing with people who have disabilities have been driven by pity rather than
empathy. Empathy drives recent reform
like the ADA or
the Community Choice Act that focus on the liberation of being able to access
public space, move around the community freely with good transportation,
contribute to the workforce, and live in the community among friends and
family.
However, we can be sure that the reaction of pity is still
alive and well in the public sphere. It
is still pity that drives Jerry Lewis’ Labor Day Telethon where he parades
children with Muscular Dystrophy in front of the camera for 24 hours, telling
of how horrible their lives are and
how badly a cure is needed. Pity is also the source of the billions of
dollars spent searching for cures for disabilities through state and federal
funding of the human genome project and stem cell research while the pitiful
funding that would help people with disabilities live well as they are is under
the constant threat of being cut or eliminated.
Of course, as people with disabilities, we also know the
first hand experience of pity in our daily lives. When it comes to everything from prospective
dates to prospective employers, we know how it feels to have someone pity
us. We make them very sad. They feel very bad for us. But, they never would dream of accepting us
as their equal. Pity is the very thinly
veiled assertion of power. To be pitied
is to be told that we are less than. People assert their dominance by vehemently
underscoring the difference of the other and establishing themselves as
superior. Empathy draws forth the
attitude of “I will help you because I could be you,” where pity is the
expression of “I will help you because I want to show how I am NOT like you.”
Sometimes that thin veil that hides the true nature of pity
is fleetingly lifted and we get an unobstructed view of its ugliness. For
example on May 20, 2001, when an interviewer with CBS Sunday Morning suggested
that pity may be a harm rather than a good for people with disabilities, Jerry
Lewis responded with violent anger, "Pity? [If] you don't want to be pitied because you're a
cripple in a wheelchair, stay in ya house!"
Some of the same social attitudes and beliefs that typically
get expressed as pity can quickly and easily boil over into violence when
someone REALLY wants to feel dominant.
There has always been violence toward people with disabilities of one
sort or another. Some of it has been
institutionalized violence like the Nazi’s T4 program to systematically murder
German citizens with disabilities – ironically according to Wikipedia the name
T4 was “an abbreviation of “Tiergartenstraße 4”, the address of a villa in the Berlin borough of Tiergarten
which was the headquarters of the General
Foundation for Welfare and Institutional Care. [emphasis added]” Some of the violence has been more subtle,
like the assertion of power that comes when an entire class of people are
imprisoned in nursing homes and state run institutions, despite having
committed no crime.

The most recent instance of violence against a person with a
disability that has everyone talking is that of Brian Sterner, a quad who was
dumped from his wheelchair in Florida
recently by a police deputy. The deputy
“didn’t believe him” when Sterner said two or three times that he was paralyzed
and could not stand up to be frisked.
The surveillance camera footage that caught the violent episode shows,
in the background, other deputies chuckling at Sterner laying on the ground. This incident may seem isolated and
outrageous, but hate crimes and other violence against people with disabilities
happen pretty regularly. The abuse of
people with intellectual disabilities is particularly pervasive and there is
reason to believe that it is also underreported.
The bottom line seems to be that we, people with
disabilities, are a class that are subjugated to the extent that the socially
acceptable response to our situation, pity, seems to be only a hairs breath
away from full on violence. I hope that
someday we see more empathy and less domination. As an aside, according to a friend who
personally knows Sterner, he plays murderball and is in grad school working on
a degree in philosophy, so I have particular empathy for him. :)
Filed under: disability, crip culture, disability experience, revolution, activism, rebellion, oppression, disability rights, discrimination, forced sterilization, stem cell research, empowerment, crip power, anger, liberation, love, justice, history, Independent Living movement, de-institutionalization, charity model, dominance, holocaust, social model, medical model, stigma, brian sterner, violence, Jerry Lewis, pity, empathy