Left Thumb Blogger
Left Thumb Blogger
Westcoast of British Columbia
Female
Married

The Suckiest Part about My Cerebral Palsy

Posted: 8/15/2008 at 09:33 AM

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I can manage without being able to walk; for the most part I can get where I am going. I can deal with my limited hand function; I can do most of what I need to do. I can even cope, most of the time, with speaking Glenda-ish.

 

But, what I have yet to handle is the way my body reacts to heat. Once the temperature hits 28, although I try holding out until 30c, I melt. Literally. My four limbs become four heavy, wet noodles. Coordinating their movement takes conscious effort. Tasks like typing and feeding myself becomes a strenuous Olympic event. And, all my nerve endings are on full alert and in pain.  Then my emotions over flow and the tears begin. I'm not a pretty sight in the heat.

 

All I can manage to do is to lie down and remain still. And that is when frustration kicks in. There is so much I need to do and want to do, but, on hot days, I am not physically able to do at that point, no matter how hard I try.

 

Last night, getting into bed - something I've done a million times before without incident, I caught my left heel on my scooter, throwing me off balance. I slid, in slow motion, down in between the bed and my scooter. It was one of those falls I knew was coming yet there was nothing I could do except let it happen. Thankfully, the only collateral damage was a chunk ripped out of my heel.

 

Today's expected high is 34c. Oh joy! That is why I am writing this at 7am, in the cool of the morning. With the fan, blowing, it's down to 28.4c in my office. I'm thinking today is a good day to catch the Olympic spirit and actually watch some. Perhaps I'll witness Canada win its first medal!

 

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  • Christine Vea wrote on Aug 15, 2008 at 12:19 PM
    After reading this post ... I will not, today, complain ONCE about it being too hot. Often reading your writing reminds me to 'put on my big-girl panties' and deal with things. You are an inspiration, miss Glenda.. an INSPIRATION, I say! My thoughts are with you today as you tackle this mini-heat-wave. I find slushy-type drinks and popsicles are great internal air conditioners... and yes... turn that fan on high, plant yourself in front of the television and catch some Olympics - YOU DESERVE A DAY OF REST!! Cheers my friend... I hope you find a way to stay cool(ish). :) Christine
  • Do It Myself Blog - Glenda Watson Hyatt » The Lazy Hazy Days of Summer wrote on Aug 15, 2008 at 12:29 PM
    Pingback from Do It Myself Blog - Glenda Watson Hyatt » The Lazy Hazy Days of Summer
  • ecrowley wrote on Aug 15, 2008 at 1:23 PM
    Ouch. Hope your heel is okay!
  • Nanal wrote on Aug 15, 2008 at 2:00 PM
    Yes........you are an inspiration.......I also will think of you today.........here in Texas.........heat is a daily topic.......but just as an annoying thing........most everyone doesn't have to see their bodies slowly stop functioning because of it.......but do take the opportunity to watch the olympics.........everything else can wait !........Have a good day........in spite of the heat !!!!!!.....More power to you !!!........peace and love.....Norma
  • Left Thumb Blogger wrote on Sep 3, 2008 at 3:57 PM
    Wow, where did August go? It seems like merely last week I was celebrating my tenth anniversary . Then