Kara
Kara
Kentucky
Female
Married

Does your online life leave you feeling better or worse about the real world?

Posted: 9/16/2008 at 03:25 AM

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It's a little known fact that I occasionally read research journals for fun.

No really-I do.

I no longer have coursework to blame for my online reading of newly published research so I've decided to come out into the open with my habit. And what better time than with the release of an entirely USEFUL study which I found more interesting to us than the vast majority of what's in mainstream mags.

In the April 2008 volume of Rehabilitation Counseling Bulletin, Susan Miller published the results of her study that sought to answer this question: Does the type and frequency of Internet use make people with spinal cord injuries feel like they have more social support? Does how much or what type of online activity have an impact on the well-being of people with disabilities?

Before launching into the results of this study, I was surprised to learn that previous research has found people with  disabilities are much LESS likely to use the Internet compared to able-bodied people. BUT-when and if we can get our paws on a computer, we're likely to use it TWICE as often as people without disabilities. On average, we spend 20 hours a week on the computer while AB's spend around 10. These numbers seemed reasonable to me. I'm online more than any of the able-bodied members of my immediate family and most of my real-world friends. Then again, I work online-and they don't- so I'm not sure if I count!

What most people don't know about scientific studies is that it takes what's called a significant relationship for the results to even really matter. The vast majority of studies don't find a significant relationship-just because there are so many factors that can mess everything up...or maybe the two things (like Internet and feeling good) really aren't related.

This study did NOT find any significant relationship over the overall FREQUENCY of Internet use. So the more a person used the Internet didn't really change how good they felt or whether or not they felt like they were supported from others. The study did, however find that the TYPE of Internet use did seem to make a positive difference in the lives of people with spinal cord injuries. Online gaming didn't have a good effect on feeling good, but creating and updating a webpage, like a blog (hint..hint), did!

[Photo caption: Several hands are shown perched on a number of keyboards in a row. It's a cropped picture of a busy computer lab.]

What might be most interesting to Disaboomers is the finding that participating in forums improved a sense of well-being and social support. In addition to online gaming, the only other negative online activity identified was searching for disability-related information. This is one of those activities that's hard to define. I can see how it might be depressing to just search for hours on WebMD or google, but what about if you do it in a more social way-like by posting questions here?

To me, this study made sense. I think the Internet CAN be an empowering tool for people with disabilities-but it just depends HOW you use it. Nothing can replace real face-to-face support from people, but the fact is very few of the people I see every day truly understand most aspects of my life. For me to feel fully supported-it helps me to come to places like Disaboom.

And now I can in peace...backed up by research of course!

[Cartoon caption: A family of a mother, father, and son are pictured at the dinner table. The caption reads, "Well, yes, we could read your blog...or you could just tell us about your school day."]

[If you want to read the study for your self, here's the reference: Miller, S.M. (2008). The effect of frequency and type of Internet use on perceived social support and sense of well-being in individuals with spinal cord injuries, Rehabilitation Counseling Bulletin, 51, 148-158]

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  • Does your online life leave you feeling better or worse about the … | Online Gaming wrote on Sep 16, 2008 at 2:28 AM
    Pingback from Does your online life leave you feeling better or worse about the … | Online Gaming
  • naomimimi wrote on Sep 16, 2008 at 11:23 AM
    Great post, Kara!
  • Kara wrote on Sep 16, 2008 at 11:49 AM
    @naomimimi Thanks! I found it really interesting that the amount of Internet use didn't really have an effect...Some people in the survey were online (mostly either chatting or playing games) for up to 80 hours a week! That seems like a lot to me.
  • Deaf Mom wrote on Sep 16, 2008 at 4:27 PM
    I'm a heavy internet user, but I make sure to balance it well with real, face-to-face relationships as well. :) But, I think my husband would probably have no qualms sending me to a 12-step Internet-Anonymous meeting.
  • MissLiz wrote on Sep 16, 2008 at 5:43 PM
    Great cartoon!
  • pambe2 wrote on Sep 16, 2008 at 7:33 PM
    Good work Kara! It's true then, there are real benefits to interacting on disaboom! If the study said otherwise I wouldn't have believed it anyway lol. I wonder if that's true when we squabble...?
  • EMMA1 wrote on Sep 26, 2008 at 6:06 AM
    Could you PLEASE contact Disaboom, to tell me that they are not responding to my emails? I've been locked out for several months now, I don't know why. It could help. Thank you
  • Maureen wrote on Sep 26, 2008 at 6:39 AM
    This is an amazing question and I'm glad you put it out there. As soon as I read it, I knew I had to write. My initial reaction was negative. I realized why. I have joined many boards and sites having to do with my "dis-ease" and I have learned, over the past 10 years, that there have been some that have had a very positive influence on me and others, extremely negative. Those that stand out as negative, were those where people banded together, not only to commiserate, but to whine and complain endlessly. As a matter of fact, there was one that had such poor security, that you could pull up negative comments just by putting in a name or user name. Obviously, I dropped out of that one. But I think we all have to be careful with whom and what we associate ourselves with on the internet. Actually, it's kind of like real life. You "choose" friends and wouldn't maybe choose some of those you meet on the internet. Same with the sites that you frequent. I feel I need to be "choosier" that way, as well. I found myself dragging the negativity of that site into my "real life". Thanks for the question. It really made me stop and think. Best of luck to you and to all who read/respond. Mo
  • Doc Riley wrote on Sep 26, 2008 at 6:58 AM
    I find the Internet a GREAT relief for me. I collect & research medals to WWI & WWII British/Indian Army recipients and Soviet Medical Service medal recipients and write articles for a Medal Journal. As such, I am a member of several Medal forums and plenty of friends there. Many I have eventually met in person. My time at these forums helps me connect with others from around the world. I have friends in Russia, Kiev, St. Petersberg, France, Belgium, etc. Plus many here in the States. I think that my life would be VERY lonely without these friends. Getting to meet and call them is the icing on the cake. Doc
  • JudiElise wrote on Sep 26, 2008 at 7:23 AM
    KaraSwims wrote: "...but the fact is very few of the people I see every day truly understand most aspects of my life." With that line, you sum up why people with disabilities find a better life online. I know that is my reason. I have several illnesses/conditions that limit my mobility, vision, hearing and life. Additionally, I am a mother of two children, one with neurological special needs and the other with a rare medical condition. Also, my husband has epilepsy. In our area, no one understands our lives. There isn't really a family like us around. So, onto the internet I went, and found dozens of people struggling with one or another of the things I struggle with. They don't stare, they encourage. They don't pretend they have something they just have to do, they spend time and get to know me. If I am silent too long, I get inquiries into everyone's health and situation. They truly care. It is nice to see research and defined science about what millions of people in social communities already know. It does somewhat give you a small modicum of peace . But, I am sure you know, the greater validation comes from the community and the people who make it up. Judi P.S. I, too, have a thing for research journals. Do we need a 12-step program?