Deaf Mom
Deaf Mom
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Life with Crohn's Disease

Posted: 6/4/2008 at 04:52 PM

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During the summer of 2002, Colleen Wainwright began losing weight, so much weight that even perfect strangers began to comment on her gaunt appearance.  Her friends began to express concern about her mental as well as physical health.  I'd gone through a horrible breakup that spring, and I think they feared I'd become anorexic or bulimic,” said Colleen. “Which could not have been farther from the truth: especially toward the end, I was scarfing down insane amounts of calories trying to keep weight on, to no avail.

Colleen attributed her weight loss to her heavy work schedule and didn’t become concerned until other symptoms began to show: high fevers, horrible diarrhea, mind-bending cramps, muscle aches and never-ending fatigue.

 

Her sister tricked her into going to the emergency room and while in the hospital, Colleen received the diagnosis:  Crohn’s Disease. “Honestly, and rather oddly, I was relieved,” Colleen explained.  “At least when you have a diagnosis, you know what you’re up against.  Until then, I seriously thought I had some crazy tropical disease that I picked up from a coffee cup.  A barista sneezed on my coffee cup right before I became very sick.”

 

Colleen was actually no stranger to Crohn’s Disease, as her father battled it when she was growing up. “I'd always been a workaholic, much like my dad. Plus a big control freak and do-it-yourself-er: I hated the idea of relying on anyone.”

 

After being released from the hospital, Colleen quickly learned that her life had changed and she needed help.  She was not able to walk up a flight of stairs without assistance.  Taking out the garbage or doing laundry were tasks she couldn’t even take on.  “Basically, I went from being obnoxiously self-sufficient to utterly dependent, and stayed that way for weeks. It was humbling and completely life-changing: all of a sudden, my eyes were opened to how much we are all dependent on each other, and how generous people truly are. It brought me to tears more than once.”

 

Colleen discovered that she could no longer work the long hours that she used to; physically, her body would give out and she experienced fatigue.  For three years after her diagnosis, Colleen went on a strict, specific carbohydrate diet, and she shares those details on her blog article: The Specific Carbohydrate Diet.  She credits the diet and stress management for helping to put her Crohn’s Disease into remission.

 

For others battling Crohn’s, Colleen offers some advice: “Expore your options fully. Do not take your doctors' words as gospel, and make sure you have an advocate should you end up hospitalized. It's hard to fight for your rights when you're in a weakened state.” 

 

“The biggest change, though,” said Coleen, “was probably in my attitude. I had been so blessed with so many gifts that I never appreciated; it took getting really, really sick to see how lucky I was. Not an uncommon refrain, I know, but really, it's true: there's nothing for opening your eyes like a catastrophic illness.”
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  • Left Thumb Blogger wrote on Jun 6, 2008 at 5:02 PM

    Amazing how life gives you wake up calls that make you more aware and present in your life. But why do some wake up calls need to be so hellish?


  • Deaf Mom wrote on Jun 8, 2008 at 9:04 AM

    I had the wonderful opportunity to meet Colleen at the SOBCon'08-- great gal to chat with. She's turned her life experience into an opportunity to educate others via her blog.


  • Left Thumb Blogger wrote on Jun 11, 2008 at 9:46 PM

    Ah, communicatrix! Someone else to meet at Sobcon09!


  • meryl wrote on Jun 14, 2008 at 11:09 PM

    Glad to hear that Colleen found a way to work through Crohn's. It is a miserable illness as one of my dear friends battled it and didn't have a happy ending.


  • blogpromotion wrote on Jun 23, 2008 at 5:10 PM

    It's time to give out Disaboom's first Blogging Hero Award! First, if you haven't yet seen


  • Harrison McLeod wrote on Jul 22, 2008 at 11:57 PM
    I found this through DeafMom's links and had to check it out. My brother has Crohn's and has had it ever since he was a kid. I remember many trips to Yale-New Haven hospital with him over the years. He managed to get through it (although the stress of his job still gives him relapses from time to time). But his doctors considered him as one of their success stories. It is an odd sense of relief when you finally get a diagnosis on something like this. For years my mother blamed herself when my brother was a baby and cranky all the time. Back in the late 60s, early 70s the best the doctors could tell her was, "Mrs. McLeod, your son is just a bit colichy." (sp?) Congrats to you Colleen for learning how to live with Crohn's and getting the word out there.
  • Disabled Politico wrote on Jan 30, 2009 at 5:05 PM
    The state of Washington has introduced to its legislature a measure aimed at making the lives of people