cherylberyl
cherylberyl
Maryland
Female
ItsComplicated

If Not Now, When?

Posted: 1/8/2008 at 10:50 AM

  • share this:
  • Email to a Friend
  • Digg It!
  • StumbleUpon
  • Fark
  • Facebook
  • del.icio.us
  • Reddit
  • NewsVine

member(s) liked this post.

What I’ve learned about myself from doing my disability awareness workshop: First and foremost, I have two very strong personal creeds, which have guided most everything I’ve done this past year. The first is “don’t reinvent the wheel.” If someone’s done something really great before, it’s totally ok to steal their ideas. Not just ok, but I wholeheartedly encourage such behavior. I’m not talking about taking credit for things that break intellectual property laws; in fact, I’m not even talking about taking credit for any type of ideas. I will be the first to admit where I got something from. I just feel like why waste perfectly good energy coming up with things from thin air when sometimes things are basically served to you on a silver platter.

 

For my second personal creed, I’m going to quote Rabbi Hillel, who lived in the first century CE. “If I am not for myself who will be for me? If I am only for myself who am I? If not now when?” (FYI, Jews always answer questions with questions. It’s what we do.) I first heard this quote when I was 9 years old. Someone wrote a whole song around it that I learned at camp. I’ve never really thought about what it meant before, but I think it fits me perfectly. I think what it means is that you need to remember to take care of yourself and be true to yourself while always looking out for the needs of others, because basically, if you don’t do it nobody’s going to come along and do it for you. I really haven’t been the greatest at adopting this ideal into my life as a whole, but I feel like I’ve managed to do so in at least one area, and I guess that’s a start. I emailed my department chair because I saw a need; a need that no one else was going to fill. So I blindly jumped right in and did something about it.

 

I’ve been spending hours lately, since I started this blog, doing deep philosophical thinking about different aspects of my life. Really picking each one apart until I come to a definitive answer on whatever it is. Is it the right answer? I have no idea. But at least I feel like I’m accomplishing a whole lot more then if I were to spend those same hours watching TV. One of the thoughts that has popped into my head recently is that I am now the token gimp of the family studies department. I can’t very well say that I am the token gimp of Towson University. I feel like the amount of physically disabled students has increased even in the short time that I’ve been there, so of course I’m not the only one. And anyway, that honor has to go to Dan Keplinger (he is King Gimp after all). But if you factor in the fact that 6% of Towson students (aprox 1100 out of 19000) have identified themselves to disability support services and that most of those students have learning disabilities, and then you factor in the fact that according to a Towerlight article printed last spring there are only 175 family studies majors, you end up with just me. I could run off a fair list of family studies majors that have either learning or medical disabilities but I haven’t seen another person with a disability as overt as mine. Even before the slightest of thoughts about a workshop came into my mind I was the one that raised my hand in Trends in Family Life class and pointed out that the average person on supplemental security income (SSI) gets about twice the amount of money per month that a single mother with kids gets on welfare. Who else would need to know that? I am going to be on SSI in the foreseeable future.

 

Do I mind being the token gimp of the family studies department? Absolutely not. That’s a far cry from five years ago when I was ordering my powerchair—“No one’s going to be friends with me or even talk to me because I have a wheelchair.” The wheelchair and the crutches and not driving and things still bother me, but a lot less since I’ve gotten philosophical. If I didn’t have a wheelchair or crutches or if I could drive, I wouldn’t be the token gimp. Being the token gimp is important. It fills a need. I'm at an institution of higher learning, and I have single handedly provided students several opportunities to employ high-level critical thinking skills both directly and indirectly. Maybe someone I’ve been in a class with, who would have seen me in a restaurant (with food on my shirt of course) and automatically thought I was retarded has had a schematic shift, and is now many times less likely to make such erroneous assumptions again. Not that I’ll ever know, but I can hope.

 

244 Views
  • share this:
  • Email to a Friend
  • Digg It!
  • StumbleUpon
  • Fark
  • Facebook
  • del.icio.us
  • Reddit
  • NewsVine

Your comment may take up to 15 minutes to appear.

Some HTML is allowed in the comments. See the list.
  • PhilosopherCrip wrote on Jan 8, 2008 at 9:41 AM

    Cool post.  I think there are even sometimes "Token Gimps" for entire professions. For example, there are only a small handful of philosophers who do bioethics in the US that have a disability.  I can literally list them on one hand and I will hopefully be soon joining their ranks.  This is scary for me because although I can bring some diversity to the conversation and add a much needed perspective of someone with a disability (which is almost always the topic of any bioethical debate, even if that fact is not acknowledged), I don't think I am in a position to speak for all people with disabilities.  That is the problem with being a token isn't it?  It gives you TOO much power.

  • cherylberyl wrote on Jan 8, 2008 at 9:56 AM

    The trick is to use your power to get others to speak with you. Planning my workshop with me was someone with a genetic disorder, someone with a TBI, someone with both an LD and a medical disability, someone with a speech-language disability, and a friend in another major who also has CP. You just have to use your "token gimpdom" to rally the troops of those who fly under the radar.

  • Very Unique Romantic wrote on Jan 8, 2008 at 2:29 PM

    You are doing a great job in being a positive influenece for people with disabilities on your campus. You are the flag bearer for this cause. You will find this tough at time for the students and faculty who have no clue sometimes but think that they do.LOL. We let them think what they want right.*Grinz* Then we set them straight and make them look foolish in a productive manner and hopefully they will better get the message. Some of the campus Faculty will also stick their head in the sand about these issues. You need to bring a shoves hooked to your crutches to dig them out so they wont be so clueless and can learn something about how to make their campus and community more handicappable.

    You have some major Spunktitude, and you have trouble talking to guys WHY. Good God you got more testicular fortitude then alot of the guys out there. We will give you an honorairy pair balls.LOL.

    Keep up the great work.

    Big Hugz,

    VUR

  • cherylberyl wrote on Jan 8, 2008 at 2:42 PM

    To set the record straight, I have NEVER had trouble talking to guys. I have ALWAYS had guys as friends, but that's it.

    Now as far as faculty goes, I was in a really good position. We have 10 full time professors in my department. My adviser is a certified child life specialist/art therapist, so she's pretty up on disability issues. My department head has her undergrad in OT (used to teach for the OT dept). I think I also heard she has a kid with an LD too. One of my fave professors has a kid with an LD. Another professor has a sister with pretty severe CP. One part time professor heads a transition program (she has a kid with complex needs I think). They were all pretty receptive to letting me do this, and even with their backgrounds, never doubted that I'm more of an expert in this then any of them are. Boy did I hit the jackpot.

  • Very Unique Romantic wrote on Jan 8, 2008 at 4:40 PM

    You arent kidding that you hit the jackpot. WOW that is great that you have so many professors that understand what you are going through and have childern or loved ones with one disability or another.

    To Set the Record straight I was not saying that you have trouble talking to all guys. In your blog about sex baby you say that you usually sit in the corner to avoid gentleman and that you would try now to meet them and say hello. Hey if you dont get in the game you will never know what is possible. Plus you have major SPUNKTITUDE ON YOUR SIDE.

    BIG HUGZ,

    VUR

  • Vicki wrote on Jan 12, 2008 at 3:05 PM

    Keep rallying those troops and smile while you're doing it.  You may be a student, but you are apparently a teacher as well.

  • cherylberyl wrote on Jan 26, 2008 at 11:35 AM

    The topic for this week’s disability blog carnival is “ what professionals should know about disability